When I first came up with the idea for this blog, I had a lot to say.  I had read a lot of writers blogs, and I had read a lot of patient blogs over the course of several prolonged hospitalizations.  And I thought a blog would be the perfect forum for me to practice writing and talk about my experiences as a patient with multiple autoimmune diseases.  I came up with the name “Novel Patient” because I thought it cleverly described me on multiple levels.  I’m writing my first novel.  I’m a patient.  I have several unusual diseases.  Etc.

But before I could get started, the brain fog really set in and I found that writing a sentence took infinitely more time and concentration and effort than I had.  I effectively lost my writing voice.  And as I struggle now finally several months later to write this first entry (which in the past would have taken no effort or time at all), the name “Novel Patient” takes on yet another meaning as I try and be patient with myself and my seemingly endless new limitations and refind my writing voice.

And now several minutes have elapsed while I starred at the dusty screen of my Macbook trying to remember where I was going with this.  But, alas, it’s gone and not coming back.

But it doesn’t really matter because I can adapt.  It’s probably the most important thing I’ve learned about being a novel patient.  Adaptation.  So I hope you’ll forgive my fragmented writing because I’m afriad its part of the package.  Along with the brain fog and everything else.