Some Bad News
January22
So I got a call from my doctor on Monday. Apparently some lab tests had come back and my liver enzymes are elevated. It could be from being on Prednisone for so long and the over 100 pounds of weight it’s made me gain in the last year. It could be from the new medication that I’m on that supposed to be helping slow down my autoimmune diseases but isn’t helping (another story). Or it could be my autoimmune hepatitis flaring up.
All of the possibilities are not very good. So I have an appointment with my gastrointestinal doctor on Tuesday to do some more tests and decide what to do.
In the meantime, I’m unsuccessfully trying not to worry and wondering if this is why I’ve been feeling so lousy the last few weeks…
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As a heart transplant recipient, I can relate to such a situation. Whatever the outcome, you’ll be ready to deal with it, just like you’ve dealt with everything so far. good luck!
I was diagnosed with autommune pancreatitis in Oct 08, and it has been one of the hardest journeys of my life. The weight I have gained has caused me so much pain in my back and they do not know what it is. I have had 6 MRI’s which show nothing except degenerative disc disease and a nerve root sticking out of my siacia, one Doctor said it is just your Fibromyalgia acting up, I ended up back in the hospital for 3 days. I also have IBS, several bulging disc, and now I have aniexety and panic attacks, (NOT ME AT ALL). The pancreatiac Doctor has only done one blood screening so far and no other follow up, I do have an appointment next week. I sure hope I can get off PREDNISONE.
I was never a complainer but I feel that there is more going on that no one is telling me. When I go to specialist for the other problems they say autoimmune pancreatitis??? They never heard of it or IgG4. II hope to find myself again one day.
Lori I’m so sorry you are going through so much! I really hope you find answers and relief! And I certainly empathize with your desire to get off prednisone… I’m going to be trying a slow tapper again myself.