Novel Patient » Medication

Dreaming of Sleep

Novel Patient — Sat, 26 Feb 2011 07:37:40 +0000

I've gone through periods of being a truly epic sleeper, but lately I've been having trouble getting a good night's sleep. Insomnia is a funny thing. I have trouble getting myself to want to go to bed in the first place. Then I wake every few h Share

Myasthenia Gravis: A New Diagnosis Knocks Me From My Path When you are living with multiple chronic illnesses things can quickly spiral out of control. ...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...
Happy February 14th! Single Awareness Day (also known as Valentine's Day) is upon us! Relationships (or the lack...

Creatively Courageously Embracing Health

Novel Patient — Mon, 18 Oct 2010 22:59:46 +0000

This is not an easy thing for me to confess, so please be kind. I realized that I am afraid of getting better. Not because I am afraid of being well; I want nothing more than to be well. I am afraid of getting better because I am afraid that I Share

Myasthenia Gravis: A New Diagnosis Knocks Me From My Path When you are living with multiple chronic illnesses things can quickly spiral out of control. ...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...
Too Young: Invisible Illness and Pain "Too young." That is a phrase I have heard a lot in different contexts since...

Myasthenia Gravis: A New Diagnosis Knocks Me From My Path

Novel Patient — Sun, 10 Oct 2010 05:44:20 +0000

When you are living with multiple chronic illnesses things can quickly spiral out of control. Cruising along getting through the day to day and then suddenly you are veering off the road and into the dark unknown. What started as a tiny pimple t Share

Hospital Update I'm scared about tomorrow. Tomorrow I have to get a feeding tube put in. But...
Sjogren’s Syndrome Awareness Month As the month draws to a close, I am reminded that April is Sjogren's Syndrome...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...

An Update and a Big THANKS!!!

Novel Patient — Mon, 04 Oct 2010 04:49:11 +0000

Even as I listen to the alarms of my own monitors, angry that things still aren't quite as they should be, today I just feel so grateful to be alive. Life is so precious and short and wonderful. I feel so lucky to be breathing on my own again. It Share

Current Hosptialization Update I have multiple autoimmune diseases that have made me really sick over the years. But...
Hospital Update I'm scared about tomorrow. Tomorrow I have to get a feeding tube put in. But...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...

Current Hosptialization Update

Novel Patient — Thu, 23 Sep 2010 18:45:30 +0000

I have multiple autoimmune diseases that have made me really sick over the years. But got a bad skin infection (cellulitis) last week and ended up in the hospital last Friday mostly because I have so many complications including being on a lot o Share

Hospital Update I'm scared about tomorrow. Tomorrow I have to get a feeding tube put in. But...
Seeing Double There are two ways to look at everything. Like dark and light. Like black and...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...

Too Young: Invisible Illness and Pain

Novel Patient — Mon, 13 Sep 2010 18:47:12 +0000

"Too young." That is a phrase I have heard a lot in different contexts since I've been dealing with chronic illness. I've been told I'm "too young to be this sick", "too young to have to use a wheelchair", and "too young to have to use a walker" Share

Full Disclosure Before I was in a wheelchair and now a walker, my illness was pretty invisible....
30 Things About My Invisible Illness You May Not Know The illness I live with is: Sjogren's Syndrome, but I also have Autoimmune Pancreatitis, Autoimmune...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...

A Place For Him

Novel Patient — Mon, 24 May 2010 05:34:00 +0000

Things have been emotionally rough and raw lately. Lot's of things are in transition. Relationships in flux. And I'm still stuck in the hospital (33 consecutive days and 39 total days in the hospital by my count). I'm trying to think of it as Share

Shattered Trust I'm Daddy's little girl all grown up, but I still need my daddy. I want...
Hospital Update I'm scared about tomorrow. Tomorrow I have to get a feeding tube put in. But...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...

Shattered Trust

Novel Patient — Thu, 20 May 2010 00:15:59 +0000

I'm Daddy's little girl all grown up, but I still need my daddy. I want to bask in his strong embrace. Instead he gives my heart a chase. He pushes me away into the wrong kind of space. My dad and I hold polar opposite believes when it comes Share

Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...
Fear Fear and OCD are a bad combination. It's bad enough to have a fearful thought...
Seeing Double There are two ways to look at everything. Like dark and light. Like black and...

Patience in the Hospital

Novel Patient — Thu, 29 Apr 2010 22:19:59 +0000

Though I am a Novel Patient, patience isn't my strong suit. But patience is what is required of me right now. My kidney infection has triggered a flare of my Autoimmune Pancreatitis. I've completely lost my appetite and am having severe upper Share

Reporting from the Hospital I hoped for the best, but prepared for the worst, and unfortunately the worst won...
Fear Fear and OCD are a bad combination. It's bad enough to have a fearful thought...
Better Enough? I'm well on my way on the road to recovery. I've been doing more and...

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Sjogren’s Syndrome Awareness Month

Novel Patient — Tue, 27 Apr 2010 00:23:30 +0000

As the month draws to a close, I am reminded that April is Sjogren's Syndrome Awareness Month. Sjogren's is my primary diagnosis, the overarching disease process that ties all (or most) or my symptoms together. But what is Sjogren's Syndrome? Share

Sjogren’s Syndrome Awareness Month April is Sjogren's Syndrome Awareness Month, and since it is currently my main diagnosis I...
My Illness By The Numbers 17 The number of diagnoses I've accumulated so far... Sjogren's Syndrome, Autoimmune Pancreatitis, Autoimmune Hepatitis,...
Visualizing Symptoms Appearances can be deceiving with a chronic illness. Looking at a person you usually can't...