Novel Patient

Scrapaganza

Novel Patient — Mon, 13 Jun 2011 07:48:34 +0000

When I look back on the most rewarding experiences of my life, they are almost all to do with serving others. Right now I'm working on a community service project called Scrapaganza. Scrapaganza is a scrapbooking event at the Ronald McDonald Share

No related posts.

© Novel Patient for Novel Patient, 2011. | Permalink | One comment | Add to del.icio.us
Post tags: circumstances, donations, Facebook, family, hospital, inspiration, joy, joyous memories, keynote, Los Angeles, mcdonalds, Organizations, parent, parents, personal story, Philanthropy, rewarding experiences, ronald mcdonald house, Ronald McDonald House Charities, scrapaganza, scrapbook, scrapbookers, scrapbooking event, siblings, story, stressful time, support, Twitter, volunteers

Dreaming of Sleep

Novel Patient — Sat, 26 Feb 2011 07:37:40 +0000

I've gone through periods of being a truly epic sleeper, but lately I've been having trouble getting a good night's sleep. Insomnia is a funny thing. I have trouble getting myself to want to go to bed in the first place. Then I wake every few h Share

Myasthenia Gravis: A New Diagnosis Knocks Me From My Path When you are living with multiple chronic illnesses things can quickly spiral out of control. ...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...
Happy February 14th! Single Awareness Day (also known as Valentine's Day) is upon us! Relationships (or the lack...

Happy February 14th!

Novel Patient — Mon, 14 Feb 2011 08:01:37 +0000

Single Awareness Day (also known as Valentine's Day) is upon us! Relationships (or the lack there of) are on the mind. Relationships are hard. Romantic relationships are harder. Even for healthy people. Having a chronic illness makes it Share

Love Bug Relationships are complicated enough, but adding chronic illnesses into the mix increases complications exponentially. In...
Visible Today is the first day of National Invisible Chronic Illness Awareness Week, and it has...
Full Disclosure Before I was in a wheelchair and now a walker, my illness was pretty invisible....

The Grieving Process of Chronic Illness

Novel Patient — Tue, 18 Jan 2011 21:24:24 +0000

Sometimes I forget that learning to live with a chronic illness is an endless grieving process. I tend to get very caught up in maintaining a positive attitude, and fail to let myself feel the negative feelings that naturally come with all the chan Share

Being Public with Chronic Illness Since I've been open with my chronic illness, the positives of letting the world take...
Progress! I've been home from the hospital for 45 days today I just realized, and I...
Myasthenia Gravis: A New Diagnosis Knocks Me From My Path When you are living with multiple chronic illnesses things can quickly spiral out of control. ...

Recovery Blues

Novel Patient — Sat, 04 Dec 2010 04:26:47 +0000

The recovery process after a long hospitalization can be long, boring, and frankly difficult on so many levels. Yes, I said after a long hospitalization. I'm pleased to share I'll have been home three weeks on Monday! And while being home is an Share

Sjogren’s Syndrome Awareness Month As the month draws to a close, I am reminded that April is Sjogren's Syndrome...
Definitions: More Than Just a Novel Patient There are many things that define me a Novel Patient, mainly my collection of unusual...
Keeping The Faith Through my chronic illness, I have come to realize how crucial it is to have...

Trapped on a Pedestal

Novel Patient — Thu, 11 Nov 2010 23:35:59 +0000

This isn't one of those happy inspiring posts I often do. Why? Well, right now I'm not feeling happy or inspiring. I'm feeling depressed and frustrated with the world. Today marks the 8th week of my stay in the hospital. From here on out I' Share

Shattered Trust I'm Daddy's little girl all grown up, but I still need my daddy. I want...
Too Young: Invisible Illness and Pain "Too young." That is a phrase I have heard a lot in different contexts since...
Fear Fear and OCD are a bad combination. It's bad enough to have a fearful thought...

Creatively Courageously Embracing Health

Novel Patient — Mon, 18 Oct 2010 22:59:46 +0000

This is not an easy thing for me to confess, so please be kind. I realized that I am afraid of getting better. Not because I am afraid of being well; I want nothing more than to be well. I am afraid of getting better because I am afraid that I Share

Myasthenia Gravis: A New Diagnosis Knocks Me From My Path When you are living with multiple chronic illnesses things can quickly spiral out of control. ...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...
Too Young: Invisible Illness and Pain "Too young." That is a phrase I have heard a lot in different contexts since...

Myasthenia Gravis: A New Diagnosis Knocks Me From My Path

Novel Patient — Sun, 10 Oct 2010 05:44:20 +0000

When you are living with multiple chronic illnesses things can quickly spiral out of control. Cruising along getting through the day to day and then suddenly you are veering off the road and into the dark unknown. What started as a tiny pimple t Share

Hospital Update I'm scared about tomorrow. Tomorrow I have to get a feeding tube put in. But...
Sjogren’s Syndrome Awareness Month As the month draws to a close, I am reminded that April is Sjogren's Syndrome...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...

An Update and a Big THANKS!!!

Novel Patient — Mon, 04 Oct 2010 04:49:11 +0000

Even as I listen to the alarms of my own monitors, angry that things still aren't quite as they should be, today I just feel so grateful to be alive. Life is so precious and short and wonderful. I feel so lucky to be breathing on my own again. It Share

Current Hosptialization Update I have multiple autoimmune diseases that have made me really sick over the years. But...
Hospital Update I'm scared about tomorrow. Tomorrow I have to get a feeding tube put in. But...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...

Current Hosptialization Update

Novel Patient — Thu, 23 Sep 2010 18:45:30 +0000

I have multiple autoimmune diseases that have made me really sick over the years. But got a bad skin infection (cellulitis) last week and ended up in the hospital last Friday mostly because I have so many complications including being on a lot o Share

Hospital Update I'm scared about tomorrow. Tomorrow I have to get a feeding tube put in. But...
Seeing Double There are two ways to look at everything. Like dark and light. Like black and...
Patience in the Hospital Though I am a Novel Patient, patience isn't my strong suit. But patience is what...