Freedom is something that is often taken for granted. Freedom comes in a lot of different varieties and all are often taken lightly until you don’t have that freedom anymore.  Until I got sick I took so many very personal freedoms for granted.  I especially took for granted the freedom to move around  where I want unassisted by a wheelchair and the freedom to drive to any place I wanted.

Now that I can’t walk and I can’t drive, those are things that are no longer taken for granted.  And now I am constantly searching for ways to increase my freedoms once more.

Soon I will be getting a specially designed wheelchair that will allow me to be up out of bed in it without being in pain like I am in my current wheelchair.  However, this new wheelchair can only be transported by a wheelchair accessible vehicle, something I cannot afford.

So today my sister Danielle started what we are calling my Freedom Drive – a fundraiser to help me buy a wheelchair accessible vehicle (as well as help with my other medical expenses).

Please consider donating, and, if that isn’t an option, please share this link with as many people as you can.  Please post it to Twitter, Facebook, and MySpace,  email it to your friends and family, or even blog about it!  Thank you so much for all your help and support!!!

http://www.giveforward.org/freedomdrive/

Join the Facebook Freedom Drive Fan Page!

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2010. | Permalink | 2 comments | Add to del.icio.us
Post tags: Accessible, blog, Danielle, Drive, Facebook, family, Freedom, friends and family, fundraiser, help, medical expenses, MySpace, option, pain, personal freedoms, place, share, sister, support freedom, Twitter, Vehicle, wheelchair, wheelchair accessible vehicle

But that’s not where this story starts.

Once upon a time, I was afraid of dancing.  In fact, for most of my life I was afraid of dancing.  I never was super coordinated and I certainly lacked natural rhythm.  I was convinced I couldn’t dance and that I looked stupid trying.

Later, when I was old enough to have a few drinks first, I could get up the courage to dance a bit.  And when over a year ago now I ended up in a wheelchair, dancing seemed to be out of the cards forever.

But the world works in mysterious ways.  And someone named Jane McGonigal came into my life and with her eventually came her invention Top Secret Dance Off.  She and her games have changed my life for the better in innumerable ways and she has truly been a blessing to me, so when I heard about Top Secret Dance Off or TSDO I knew I had to be a part of it.

However, the way you participated in TSDO was by donning a disguise and submitting your video of you dancing to one of the dance challenges.  But I was in a wheelchair.  I could barely dance before.  How could I now?  But I am not so easily dissuaded from something I am determined to do.  So timid at first I made my first and then second video featuring Finger Dancing!

But then I began to joke to my fellow TSDO players that I would wow them with a wheelchair ballet.  Their response to the idea was so positive that I decided that it was something I had to do.  So I recruited my best friend and caregiver at the time Sarina (a real former ballerina) to help me.  The result wasn’t something either of us expected and the response to the video blew me away.  People laughed and cried and were moved and inspired.

For my wheelchair ballet video I won a mask.  The only condition of accepting the new mask as a reward was I had to make a video of me putting on the mask for the first time and dance whatever dance came out using a dance move known as “the solar eclipse” which I was told started in the elbows.  To this day I’m not sure what happened to me when I put on the mask, but my fear of dancing was conquered!  See for yourself…

So tonight I am unmasking myself to all of you because tonight while out to dinner and dancing with my dad and his girl friend I wheelchair danced without any mask at all and I didn’t have to think twice about it.  And although I didn’t see it myself, my dad said when I powered on my wheelchair to spin around on the dance floor, the people behind me watching applauded and cheered.

It occurs to me that the world is full of little miracles and hidden blessings like this.  Because without a wheelchair and Jane and TSDO I may have never challenged myself to get over my fear of dancing at all.

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2010. | Permalink | 6 comments | Add to del.icio.us
Post tags: art, ballerina, ballet, best friend, blessing, caregiver, challenges, courage, dad, Dance, dance move, dinner, disguise, drinks, Fear, games, Jane, jane mcgonigal, life, mask, mysterious ways, natural rhythm, response, Sarina, ssi, story, top secret dance off, TSDO, video, wheelchair

It’s so important to stay stress free when you have any chronic illness but especially one that’s autoimmune related.  High levels of stress lead to flareups of my illness.

Once upon a time I was a cutter.  Since then I have found other ways to de-stress that don’t involve hurting myself.  Now I have a little chocolate therapy on occasion (or rather frequently), I watch a favorite movie (usually The Princess Bride when I’m not feeling well), I talk to a friend or my sister about what’s bothering me, I scrapbook, or I force myself to write in this blog.  I’m feeling a little better already.

What do you do to de-stress when the road gets too bumpy?

A page from my Peace Book.

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2010. | Permalink | 3 comments | Add to del.icio.us
Post tags: Add new tag, autoimmune, autoimmune diseases, Chronic Illness, Conditions and Diseases, disease, Doctors, faith, hard time, health, illness, illnesses, Management, mental health, Princess Bride, stress, Support Groups

I’ve been feeling this odd sort of guilt.  Part of me feels like a failure and a quitter for finally working on getting a permanent and actually comfortable wheelchair.  I feel like it is symbolic of giving up on getting better even though I know that is not the case.  Rationally I know that my current wheelchair which was never meant to be a permanent solution is keeping me from getting the highest quality of life under the circumstances.  Right now I can’t be comfortable and in my wheelchair at the same time.  It doesn’t fit me well and causes me additional pain.  When I consider going to a movie on a rare occasion, I usually decline because I just can’t sit in my chair that long.

The new chair is going to be custom built to fit me.  It will allow me to be up and out of bed more of the day.  The whole chair tilts back to take the weight off my butt when I need it to and the feet also elevate which will help keep my ankles from throbbing.  It will have a custom pressure relieving cushion to sit on and the back rest will actually be tall enough to be useful.

All of this will help me become no longer bed-bound most of the time.  Which will be great. Yet some part of me still feels guilty.

The good news is that it comes in purple!  So that is what I am trying to focus on.  Not that I need a permanent chair, but the color.  It may sound silly, but it really does help.

The other issue is that I do not have wheelchair accessible transportation.  I won’t be able to take my new chair anywhere without it.  My current wheelchair is meant to travel — it comes apart into 3 lighter pieces that we can put in the car.  If I can’t take my new wheelchair out of the apartment, I’ll be just as stuck as I am now — in too much pain to get out and do anything.  And with SSI my only source of income, I cannot afford to even buy a used one.  So I am on a mission to find someone who will donate a wheelchair accessible vehicle using the power of social networking tools like Twitter, Facebook, and even this blog.

In case you are wondering, if money were no object, I would get a wheelchair accessible Honda Element.  But it would be a holiday season miracle if I could get any vehicle that can safely transport me to and from my doctors appointments that are about an hour away and anywhere else I needed to go more locally.  I will not be driving it, so I need the conversion to be for the passenger side.

I have approximately  3 months before I will be getting my new chair.  So consider this a call to action!  Please help me spread the word!  Please take a minute to post this to your Twitter or MySpace or Facebook or anything else you can think of!  The more people who see this the greater the chance one of them will have a vehicle for me.  Words simply cannot express how grateful I am for your help.

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2009. | Permalink | One comment | Add to del.icio.us
Post tags: accessible transportation, circumstances, failure, guilt, life, News, pain, permanent solution, ssi, wheelchair

Though it has been a rough year in many ways, I am thankful for so many things.  I am thankful for a mom who not only lets me, her 26 year old daughter, live with her, but helps take care of me.  I am thankful for a dad who cares so much for me that he will always try and do what he thinks is best for me.  I am grateful for a caregiver who I also consider a close friend and a also for a best friend who I know will always be there for me when I need her.  I am thankful for a wonderfully supportive sister.  I am thankful for a cuddly dog that adores me.

I am also thankful for my doctors who have often gone out of their way to make sure I get the care I need.  I know I am a very complicated case to have to deal with.  This year I decided to make the five of my doctor’s I see the most handmade holiday cards to let them know how much I appreciate what they do for me.

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2009. | Permalink | One comment | Add to del.icio.us
Post tags: best friend, blog, caregiver, dad, doctor, Doctors, dog, holiday cards, journey, mom, novel, patient, patient community, readership, thanksgiving, ups and downs, year anniversary

This serves another purpose as well.  When you have an unexpected and most unwelcome flare of autoimmune pancreatitis pain, you can distract yourself by making it into art while you wait for your pain meds to kick in!

Head over to Wordle to try it out for yourself (and feel free to link me in the comments).

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2009. | Permalink | One comment | Add to del.icio.us
Post tags: Allergies, anxiety, Appendectomy, art, autoimmmune, autoimmune, autoimmune hepatitis, autoimmune pancreatitis, Cholecystectomy, Chronic, Chronic Illness, concentration, Costochondritis, depression, distraction, Erythomyalgia, Fatigue, fever, fibromyalgia, flare, Hashimoto, hospitalization, Hospitalizations, Hospitalized, iga deficiency, illness, intolerance, involuntary muscle, kidney infection, medical history, medical problems, meds, memory problems, muscle weakness, numbness, obsessive compulsive disorder, Osteopenia, pain, pancreatitis, pupils, seizures, severe pain, sjogren, sleep, sleep apnea, stomach pain, symptom, symptom list, tag cloud, tremor, wheelchair, word cloud

The interesting thing is he came to the conclusion that Sjogren’s probably isn’t my main diagnosis.  He really feels that I have some sort of autoimmune neurological disorder going on causing the seizures, episodes of paralysis, tremor, severe pain upon standing that has me in a wheelchair, motility problems, bladder problems, memory problems, and recent facial drooping and uneven pupil dilation.  He thinks the Sjogren’s is secondary to whatever is causing all of that.

He’s going to be coordinating with my normal rheumy to get me a lot more specific tests to work me up for this and try and figure out if this is originating in the peripheral nerves, ganglia, or brain.  He said he suspects that it is probably in both either the peripheral nerves or ganglia and also in the brain.  He also probably wants to me travel to John Hopkins to see a neurologist specializing in this there.  He said my case is one of the most unusual and complex and in my situation I need to go to the top doctor even if he or she is located on the other side of the country.

I’m not totally sure what to think and am still processing this.  I went to him expecting to discuss other treatment options for Sjogren’s and am now going to be pursuing an alternative primary diagnosis instead.

I’m also feeling pretty scared.  I feel like I’ve been thrown back out into unknown territory again.  Back trying to tread water in the deep end of the pool.  I also know that the kind of disease he thinks I probably have is not something that is good to be diagnosed with.  I’m also frustrated that no one has really seriously pursued the neuro stuff thus far and that I had to drive 3.5 hours to see a Sjogren’s specialist to figure that Sjogren’s probably isn’t my main problem.  Sigh.

I guess part of it too is that another whole year of my life has rolled by… I just turned 26… and now we are back at trying to diagnose me again which means its going to be even longer till we can start a treatment other than prednisone again which means its going to be even longer before I have some hope of having some semblance of a “normal” life back again.  Maybe its because it’s that time of the month right now as well, but I’m just feeling really upset and like this is a step backwards.  I know intellectually it is really maybe FINALLY a step in the right direction, but it sure doesn’t feel that way right now.  I’m 26 and I want my life back.  I’ve been too ill to have a “normal” life since I was 18.  I’m just so tired of it all.

I guess the worst part is the not knowing what’s going on or what to expect.  If the doctor were to just tell me I’m going to be stuck in a wheelchair for the rest of my life at least I could learn to live with that fact.  But I don’t have any facts right now to learn to live with so I can grieve and move on.  Yes I suppose that’s the worst part of all.

I feel so lost right now I don’t know what to do with myself really.

In the meantime, my mom and I are staying at my grandma’s since she lives by this new Sjogren’s specialist which was 3.5 hours away from where I live.  We’ll be driving back on Wednesday.  The Sjogren’s specialist said he’d get back to me in about 2 weeks  – after he has a chance to talk to my current rheumy and review all the neurological testing I’ve already had done, so that we don’t repeat any tests unnecessarily.  Then there are a bunch of specialized neuro tests that I’ll need to have done either around here or at Johns Hopkins.

Intellectually I know this is a good thing and that finally getting the correct diagnosis will lead to the right treatment that will eventually get me healthier and able to live more of a life.  Right now I’m just feeling kind of depressed about the whole thing.  I’ll be okay though.  Just takes a little time to process all of this.

In the meantime I’m staying more than busy.  I’ve been continuing on with National Novel Writing Month where you try to write a 50k word novel in 30 days.  So far I’m at about 12k words, so I’m doing fairly well.  I’ve been letting a handful of beta-readers read along as I write it, and the feedback has been extremely positive and motivating for me to keep writing.  I’m also working on designing two online games and working on a huge needle point.  So at least I’m not bored. 

It all really comes back to maintaining hope.  Emotionally this has been a bit of a setback for me because I was expecting answers and got more questions.  But I choose to maintain hope that this will lead me to the right treatment in time.  Ultimately I already have whatever I have.  The diagnosis — the label — won’t change that.  I am learning to live with whatever it is regardless.  And I have faith in myself that I will get through this.  As long as I don’t loose hope I haven’t really lost anything.  There are always new options and opportunities I can make for myself if I remain hopeful and open to them!

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2009. | Permalink | 8 comments | Add to del.icio.us
Post tags: autoimmune, autoimmune disease, bladder problems, brain, Chronic, Chronic Illness, chronic illnesses, diagnosis, disease, doctor, faith, ganglia, health, hope, illness, illnesses, john hopkins, johns hopkins, life, memory problems, national novel writing month, neurological disorder, neurologist, novel, pain, paralysis, peripheral nerves, Prednisone, seizures, severe pain, sjogren, sjogren's syndrome, specialist, symptom, treatment, treatment options, tremor, uneven pupil dilation, unknown territory, wheelchair, Writing

I have high hopes that he will be able to provide me with some new treatment options.  At the same time I am nervous about getting my hopes up too high.  I have been disappointed by doctors many times before.

It can be hard to maintain hope when living with a chronic illness especially when you are told by your doctor that you are basically out of treatment options.  But the alternative — falling into despair — is much much worse.  So I choose to maintain my high hopes knowing full well that sometimes I will be disappointed.  That’s okay.  Disappointment is a part of life.  I realized a long time ago that you have to take the good with the bad.

On a different note… Sometimes I surprise even myself with what I can do if I set my mind to do it.  Since the start of the month I have been writing up a storm on novel for National Novel Writing Month or NaNoWriMo.  As of this writing, I am up to 10,701 words which puts me about 700 words ahead of schedule!  You can go to my NaNoWriMo Profile page to continue to follow my progress and to read a synopsis and excerpt from my novel.  Since I started doing creative writing again, I’ve been on sort of a writers high.  I don’t remember the last time I was in such a great mood for days at a time!

I’ve also stood up another time for a another whole minute.  I haven’t been able to do it as often as I would like, but the fact that I’m doing it at all makes me very happy.

I think hope is self-perpetuating.  Hope gives you the strength to reach beyond what you think you can do which in turn gives you more hope.  And all these things give me hope for a good today and a better tomorrow.

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2009. | Permalink | No comment | Add to del.icio.us
Post tags: Appointment, Chronic Illness, despair, disappointment, doctor, Doctors, grandma, high hopes, hope, illness, mom, nanowrimo, national novel writing month, novel, sjogren, specialist, treatment, treatment options, Writing

On Friday I turned 26 years old!  And I really had something to celebrate!  The night before I got a call from my doctor letting me know that the lab tests were a mistake and I don’t have a blood disorder!  I was so relieved I almost cried.  So on Friday I was able to celebrate my birthday worry free!

Even being able to celebrate my birthday not in the hospital is something I’m grateful for as I spent my 24th birthday in the hospital and my 25th birthday recovering from just getting out of the hospital.

So this year I celebrated by giving myself a much needed pampering.  My mom and Melissa (my caregiver) joined me in getting our hair cut and colored.  I dyed my hair red with brighter red and golden highlights.  Then we went out for a birthday lunch at one of my favorite restaurants in the mall.  Afterward we went to Bare Essentials and got our make up done.  Then we went shopping for a while and Melissa bought me my birthday present – a new pair a jeans that actually are small enough to fit (another thing to celebrate – weight loss).  Finally we got all dressed up and went out for a nice birthday dinner!

When living with a chronic illness it can seem like its one bad thing after another.  So it’s especially nice to have something to celebrate for a change!

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2009. | Permalink | 5 comments | Add to del.icio.us
Post tags: 26th birthday, bare essentials, birthday dinner, birthday lunch, blood disorder, Candle, caregiver, Celebrate, Chronic Illness, hospital, illness, jeans, lab tests, melissa, mom, restaurants, weight, weight loss

My doctor woke me up on Sunday morning to tell me that I may have a blood disorder – Polycythemia. Unless there’s been a mistake either with the lab or the blood draw itself, I am making too many red blood cells and my iron is much too high. He was hesitant to tell me what might be causing it, but if the repeat test I got today still comes back high he wants me to go see a Hematologist. I looked it up myself and the possibilities of the causes are rather frightening… ranging from cancer to a terminal illness to kidney disease.  Needless to say I’ve been feeling rather anxious about it.

In addition, I’ve started tapering my Prednisone dose again post face drooping.  My neurological symptoms of my brain inflammation have been coming right back.  My tremor especially has been so bad I am having trouble doing simple tasks.  It’s so frustrating I just want to cry.

So this evening talking to Melissa, my caregiver, about it I broke down.  I’m so tired of it being one thing after another!  It’s two steps forward one three steps back.  So I decided to take a stand.  Literally.  I wanted to see how long if at all I could bare the joint pain I get while standing.

We turned my wheelchair around so I could use the back of it to hold myself up, and Melissa sat in the chair to help weigh it down so it wouldn’t tip.  Trembling I slowly pulled myself to my feet.  It was agony.  But I shifted my weight until I found a bearable “sweet spot”.  And then I stood there for a over a minute!

It was excruciating and exhausting.  I needed to lay down afterward and take some extra pain medication.  But the victory was well worth it!  I stood for longer than I’ve been able to in over a year! I showed my illness who is boss!

I still have high hopes that the Sjogren’s specialist I’m seeing on November 9th will have some new treatment options for me that will significantly help my joint pain and neurological symptoms.  But in the meantime, I will continue to take a stand against my illness.

Recent Comments:

• Mela Eckenfels commented on Freedom Drive Hey, I would like to donate some bucks for your dream of mobility, but giveforward.org is a failure
• Kim commented on Wheelchair Dance That was fantastic!!!!!!!!!! First, my fingers were goin’ on the keyboard – I challenge anyone to lo
• Alison commented on Wheelchair Dance What an great blog! I used to dance to that song (turn around) alone in my room in 7th grade. And yo
• WackyLisa commented on Wheelchair Dance You’ve reminded me of how much fun I had at a workshop put on by AXIS Dance during college. I don’t
• Heather commented on Wheelchair Dance That’s SO awesome!! I love it! Have you seen the Glee episodes with the wheelchair dancing? You’d ge

© Novel Patient for Novel Patient, 2009. | Permalink | 4 comments | Add to del.icio.us
Post tags: adversity, agony, blood disorder, brain inflammation, caregiver, disease, doctor, hematologist, high hopes, hope, illness, joint pain, Medication, Medicine, neurological symptoms, pain, pain medication, Polycythemia, Prednisone, red blood cells, sjogren, sweet spot, symptom, terminal illness, treatment, treatment options, tremor, weight, wheelchair