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	<title>Novel Patient &#187; dad</title>
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		<title>Shattered Trust</title>
		<link>http://novelpatient.com/2010/05/19/shattered-trust/</link>
		<comments>http://novelpatient.com/2010/05/19/shattered-trust/#comments</comments>
		<pubDate>Thu, 20 May 2010 00:15:59 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=831</guid>
		<description><![CDATA[I&#8217;m Daddy&#8217;s little girl all grown up, but I still need my daddy.  I want to bask in his strong embrace.  Instead he gives my heart a chase.  He pushes me away into the wrong kind of space. My dad and I hold polar opposite believes when it comes to the treatment of medicine.  I [...]


Related posts:<ol><li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
<li><a href='http://novelpatient.com/2010/04/07/fear/' rel='bookmark' title='Permanent Link: Fear'>Fear</a> <small>Fear and OCD are a bad combination. It's bad enough to have a fearful thought...</small></li>
<li><a href='http://novelpatient.com/2010/05/12/seeing-double/' rel='bookmark' title='Permanent Link: Seeing Double'>Seeing Double</a> <small>There are two ways to look at everything. Like dark and light. Like black and...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[I'm Daddy's little girl all grown up, but I still need my daddy.  I want to bask in his strong embrace.  Instead he gives my heart a chase.  He pushes me away into the wrong kind of space.

My dad and I hold polar opposite believes when it comes
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
<li><a href='http://novelpatient.com/2010/04/07/fear/' rel='bookmark' title='Permanent Link: Fear'>Fear</a> <small>Fear and OCD are a bad combination. It's bad enough to have a fearful thought...</small></li>
<li><a href='http://novelpatient.com/2010/05/12/seeing-double/' rel='bookmark' title='Permanent Link: Seeing Double'>Seeing Double</a> <small>There are two ways to look at everything. Like dark and light. Like black and...</small></li>
</ol></p>]]></content:encoded>
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		<slash:comments>12</slash:comments>
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		<title>Reporting from the Hospital</title>
		<link>http://novelpatient.com/2010/04/13/reporting-from-the-hospital/</link>
		<comments>http://novelpatient.com/2010/04/13/reporting-from-the-hospital/#comments</comments>
		<pubDate>Tue, 13 Apr 2010 19:11:35 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=708</guid>
		<description><![CDATA[I hoped for the best, but prepared for the worst, and unfortunately the worst won out this time.
I'm back in the hospital again.
I woke up Thursday morning feeling pretty horrible.  Fever, chills, dizziness, and worsening kidney pain.  After three days of oral antibiotics, my kidney infection was getting worse not better.  I called my doctor who agreed it was time to head to the hospital.


Related posts:<ol><li><a href='http://novelpatient.com/2010/04/07/fear/' rel='bookmark' title='Permanent Link: Fear'>Fear</a> <small>Fear and OCD are a bad combination. It's bad enough to have a fearful thought...</small></li>
<li><a href='http://novelpatient.com/2009/07/30/in-the-hospital/' rel='bookmark' title='Permanent Link: In the hospital&#8230;'>In the hospital&#8230;</a> <small>I've been battling a presumed double kidney infection for almost a week now.  Horrible back...</small></li>
<li><a href='http://novelpatient.com/2009/08/11/hosptial-perspective/' rel='bookmark' title='Permanent Link: Hospital Perspective'>Hospital Perspective</a> <small>Just a quick update to let you know I'm alive.  I'm back in the hospital...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[<h1><span style="color: #800080;">I hoped for the best, but prepared for the worst, and unfortunately the worst won out this time.</span></h1>
<h1><span style="color: #800080;">I&#8217;m back in the hospital again.</span></h1>
<p><a href="http://novelpatient.com/wp-content/uploads/2010/04/86190532.jpg" rel="shadowbox[post-708];player=img;"><img class="alignright size-full wp-image-711" title="IV Number Six" src="http://novelpatient.com/wp-content/uploads/2010/04/86190532.jpg" alt="" width="219" height="292" align="right" /></a>I woke up Thursday morning feeling pretty horrible.  Fever, chills, dizziness, and worsening kidney pain.  After three days of oral antibiotics, my kidney infection was getting worse not better.  I called my doctor who agreed it was time to head to the hospital.</p>
<p>By the time I got the ER, fever, pain and dehydration had conspired to give me <a class="zem_slink freebase/en/tachycardia" title="Tachycardia" rel="wikipedia" href="http://en.wikipedia.org/wiki/Tachycardia">tachycardia</a> (racing heart rate).  I suppose one of the upsides of being really sick is being seen right away.  Despite the crowded waiting room, they found me a bed in the ER straight from triage.</p>
<p>They ran some tests.  Not surprisingly my white blood cell count was way up due to infection.  The ER doctor quickly explained that though they send home 95% of patients with kidney infections, there were multiple reasons he felt I needed to be admitted.  I&#8217;m immunosupressed from all the Prednsione I&#8217;m on, I have multiple chronic illnesses, the oral antibiotics at home didn&#8217;t work, and so on.</p>
<p>So I was admitted.</p>
<p>I received two different IV antibiotics over the next several days.  My veins weren&#8217;t happy about it and I went through 6 IVs in as many days.  But overall my stay has been uneventful.  Mostly I&#8217;ve been too tired to do anything but sleep.</p>
<p>I had several visitors who helped break up the monotony.  My mom and dad spent the most time here with me.  Sunday I was pleasantly surprised by a visit from two friends from church, Liz and Halee.  Then yesterday an old friend from high school Jenny paid me a visit followed by Christy and Brad from church.</p>
<p>I&#8217;ve been waiting this morning to find out the results of my latest tests and was just told they are good to go.  I&#8217;ve been discharged!  Yay!</p>
<p>I will go home with oral antibiotics which I will stay on long term to hopefully prevent yet another one of these kidney infections I seem so prone to getting.  It&#8217;s getting old &#8211; ending up in the hospital every few months from these things.  I&#8217;m hoping that these long term antibiotics will do the trick and keep me out of the hospital.</p>
<p><a href="http://novelpatient.com/wp-content/uploads/2010/04/Photo-on-2010-04-13-at-11.58.jpg" rel="shadowbox[post-708];player=img;"><img class="aligncenter size-full wp-image-713" title="In the Hosptial" src="http://novelpatient.com/wp-content/uploads/2010/04/Photo-on-2010-04-13-at-11.58.jpg" alt="" width="424" height="318" /></a></p>
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</ol></p>]]></content:encoded>
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		<title>Walk By Faith</title>
		<link>http://novelpatient.com/2010/03/09/walk-by-faith/</link>
		<comments>http://novelpatient.com/2010/03/09/walk-by-faith/#comments</comments>
		<pubDate>Wed, 10 Mar 2010 07:04:04 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
				<category><![CDATA[Chronic Illness]]></category>
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		<description><![CDATA[Sunday was a small miracle in the grand scheme of things but not so small to me and a miracle none the less. It was a day that I thought would never happen on many levels. One thing that I thought would never happen was get Baptized, but Sunday was my Baptism. Another thing I thought would never happen was walk at my Baptism, and yet I have gone from not walking from for over a year to no longer using my wheelchair at all in the last three weeks.


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</ol>]]></description>
			<content:encoded><![CDATA[<p><a title="Walk by Faith and Not by Sight by Heart Windows Art, on Flickr" href="http://www.flickr.com/photos/heart_windows_art/2330771133/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/2330771133_84e0a2570e.jpg" alt="Walk by Faith and Not by Sight" width="434" height="325" /></a></p>
<p><span style="color: #800080;">Arise, walk through the land in the length of it and in the  breadth of it; for I will give it unto thee. <strong><a href="http://www.biblegateway.com/passage/?search=Genesis+13:17&amp;version=KJV"><br />
<span style="color: #008080;">Genesis   13:17</span></a></strong></span></p>
<p><span style="color: #008080;"><span style="color: #800080;">He answered  them, He that made me whole, the same said unto me, Take up  thy bed, and  walk.<br />
Then  asked they him, What man is that which  said unto thee, Take up thy bed,  and walk?<br />
And he  that was healed  wist not who it was: for Jesus had conveyed himself  away, a multitude  being in that place.</span><br />
<span style="color: #008080;"><strong>John 5:11-13 (King James Version)</strong></span></span></p>
<p>Sunday was a small miracle in the grand scheme of things but not so small to me and a miracle none the less.  It was a day that I thought would never happen on many levels.  One thing that I thought would never happen was get Baptized, but Sunday was my Baptism.  Another thing I thought would never happen was walk at my Baptism, and yet I have gone from not walking from for over a year to no longer using my wheelchair at all in the last three weeks.</p>
<p>I&#8217;ve been hesitant to talk about my faith here as its a touchy and divisive subject for some, but I figure this is my blog and my faith has become a major part of my life.  I share every other aspect of my life here.  I would be remiss if I left something so close to my heart out.</p>
<p>But my faith wasn&#8217;t always so important to me.  I was raised Reform Jewish, and though I was Bat Mitzvahed, Confirmed, and even assistant taught Religious School at my Temple, I never felt connected spiritually to that faith.  So in my more recent adult years I&#8217;ve been searching for a faith that helped me feel close to God.  For a while For a while I was going to the Universalist Unitarian Church in my area, and though I liked the people and the services very much I still didn&#8217;t feel that closeness to God that I so desperately needed.</p>
<p>So when Melissa invited me to join her for services at her at our local Church of Jesus Christ of Latter Day Saints, I thought it was a long shot but worth at least checking out.   I had already learned a lot about being <a class="zem_slink freebase/en/church_of_jesus_christ_of_latter-day_saints" title="The Church of Jesus Christ of Latter-day Saints" rel="homepage" href="http://www.lds.org">Mormon</a> from her during the time she&#8217;s worked for me, and she had suggested I could get a blessing for my health when I went to church with her.</p>
<p>I was totally unprepared for what I experienced; I felt God for the first time in a very tangible way.  I knew right in that moment that my search had come to an end.  That I had found what I had been searching for.  I decided to start investigating the church and taking my Missionary Discussions that I would need in order to covert.  My blessing also said that through faith I could be healed.  It has been amazing how true that has been.</p>
<p>Over the following week I started feeling better than I had in a long time.  I decided to capitalize on the opportunity and try walking again for the first time in over a year.  I started with just a few steps.  I expected for the recovery process to be slow going.  I expected that it would take months to build up enough strength to walk more than a few steps at a time after over a year of being in a wheelchair or bed full time.  But I have been praying every night and the improvements to my walking have been exponential!  And in just three short weeks, I went from my first steps to ditching my wheelchair completely!</p>
<p>So Sunday I was Baptized, and I walked the whole day &#8211; including down the steps into the Baptismal Font and up again.  My Dad and his girlfriend Wendy were there which made my very happy.  My Mom chose not to attend which was the only sad thing.  It was one of the very best days of my life! And with it I have found such peace and happiness the likes of which I  had never known.  Words cannot describe how grateful I am.  It has been  such a relief and such a comfort.  I truly believe that through faith in Christ I have begun the healing  process!  And I am so thankful to Him for this and for the closeness I  now feel to God.  Through Him I have found what I was looking for and more than I could have ever imagined.
<a href='http://novelpatient.com/wp-content/uploads/2010/03/IMG_1081.jpg' rel='shadowbox[album-559];player=img;' title='With the Missionaries'><img width="150" height="150" src="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1081-150x150.jpg" class="attachment-thumbnail" alt="With the Missionaries who Baptized me" title="With the Missionaries" /></a>
<a href='http://novelpatient.com/wp-content/uploads/2010/03/IMG_1082.jpg' rel='shadowbox[album-559];player=img;' title='My Friends'><img width="150" height="150" src="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1082-150x150.jpg" class="attachment-thumbnail" alt="My friends after the Baptism" title="My Friends" /></a>
<a href='http://novelpatient.com/wp-content/uploads/2010/03/IMG_1083.jpg' rel='shadowbox[album-559];player=img;' title='Melissa and Me'><img width="150" height="150" src="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1083-150x150.jpg" class="attachment-thumbnail" alt="Melissa and Me" title="Melissa and Me" /></a>
<a href='http://novelpatient.com/wp-content/uploads/2010/03/IMG_1084.jpg' rel='shadowbox[album-559];player=img;' title='With Dad and Wendy'><img width="150" height="150" src="http://novelpatient.com/wp-content/uploads/2010/03/IMG_1084-150x150.jpg" class="attachment-thumbnail" alt="With Dad and Wendy after the Baptism" title="With Dad and Wendy" /></a>
</p>
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/02/09/keeping-the-faith/' rel='bookmark' title='Permanent Link: Keeping The Faith'>Keeping The Faith</a> <small>Through my chronic illness, I have come to realize how crucial it is to have...</small></li>
<li><a href='http://novelpatient.com/2010/02/20/walking-the-power-of-positivity-and-prayer/' rel='bookmark' title='Permanent Link: Walking: The Power of Positivity and Prayer'>Walking: The Power of Positivity and Prayer</a> <small>Today I walked ten whole feet!!!  It was only my second time walking in over...</small></li>
<li><a href='http://novelpatient.com/2010/02/16/dependency/' rel='bookmark' title='Permanent Link: Dependency'>Dependency</a> <small>Having a chronic illness can rob you of your independence. Suddenly you find yourself dependent...</small></li>
</ol></p>]]></content:encoded>
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		<title>Wheelchair Dance</title>
		<link>http://novelpatient.com/2010/01/17/wheelchair-dance/</link>
		<comments>http://novelpatient.com/2010/01/17/wheelchair-dance/#comments</comments>
		<pubDate>Sun, 17 Jan 2010 08:20:03 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=504</guid>
		<description><![CDATA[Tonight I wheelchair danced. But that's not where this story starts. Once upon a time, I was afraid of dancing.  In fact, for most of my life I was afraid of dancing.  I never was super coordinated and I certainly lacked natural rhythm.  I w Share Related posts:A New Look Sometimes things come crashing down [...]


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<li><a href='http://novelpatient.com/2009/03/25/numb/' rel='bookmark' title='Permanent Link: Numb'>Numb</a> <small>Literally. I bit my lip so hard I tasted blood, but felt no pain.  Most...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[Tonight I wheelchair danced.

But that's not where this story starts.

Once upon a time, I was afraid of dancing.  In fact, for most of my life I was afraid of dancing.  I never was super coordinated and I certainly lacked natural rhythm.  I w
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<li><a href='http://novelpatient.com/2009/12/09/blogiversary-a-belated-thanksgiving/' rel='bookmark' title='Permanent Link: Blogiversary: A Belated Thanksgiving'>Blogiversary: A Belated Thanksgiving</a> <small>When you are sick all the time you often have to (sometimes unwilling) rely on...</small></li>
<li><a href='http://novelpatient.com/2009/03/25/numb/' rel='bookmark' title='Permanent Link: Numb'>Numb</a> <small>Literally. I bit my lip so hard I tasted blood, but felt no pain.  Most...</small></li>
</ol></p>]]></content:encoded>
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		<title>Blogiversary: A Belated Thanksgiving</title>
		<link>http://novelpatient.com/2009/12/09/blogiversary-a-belated-thanksgiving/</link>
		<comments>http://novelpatient.com/2009/12/09/blogiversary-a-belated-thanksgiving/#comments</comments>
		<pubDate>Thu, 10 Dec 2009 06:18:07 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=476</guid>
		<description><![CDATA[When you are sick all the time you often have to (sometimes unwilling) rely on the help and support of other people.  And that is something that should not be taken for granted.  So today, on the one year anniversary of this blog, I feel like I rea Share Related posts:Hospital Perspective Just a quick [...]


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</ol>]]></description>
			<content:encoded><![CDATA[When you are sick all the time you often have to (sometimes unwilling) rely on the help and support of other people.  And that is something that should not be taken for granted.  So today, on the one year anniversary of this blog, I feel like I rea
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</ol></p>]]></content:encoded>
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		<title>A Wedge Between Us</title>
		<link>http://novelpatient.com/2009/05/04/a-wedge-between-us/</link>
		<comments>http://novelpatient.com/2009/05/04/a-wedge-between-us/#comments</comments>
		<pubDate>Tue, 05 May 2009 01:32:58 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<description><![CDATA[My dad and I REALLY don't see eye to eye when it comes to my choices of treatment.  He has a very hard time accepting that as a 25 year old woman they are in fact my choices and not his.  My dad is a staunch believer in some pretty radical (and som Share Related [...]


Related posts:<ol><li><a href='http://novelpatient.com/2009/02/20/weathering-the-storm/' rel='bookmark' title='Permanent Link: Weathering the Storm'>Weathering the Storm</a> <small>I had a bad case of "the pre-appointment jitters" over the weekend. Fear of the...</small></li>
<li><a href='http://novelpatient.com/2009/03/25/numb/' rel='bookmark' title='Permanent Link: Numb'>Numb</a> <small>Literally. I bit my lip so hard I tasted blood, but felt no pain.  Most...</small></li>
<li><a href='http://novelpatient.com/2009/04/14/waiting-game-woes/' rel='bookmark' title='Permanent Link: Waiting Game Woes'>Waiting Game Woes</a> <small>So I'm supposed to be starting a new treatment - Rituxin infusions, and I've been...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[My dad and I REALLY don't see eye to eye when it comes to my choices of treatment.  He has a very hard time accepting that as a 25 year old woman they are in fact my choices and not his.  My dad is a staunch believer in some pretty radical (and som
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2009/02/20/weathering-the-storm/' rel='bookmark' title='Permanent Link: Weathering the Storm'>Weathering the Storm</a> <small>I had a bad case of "the pre-appointment jitters" over the weekend. Fear of the...</small></li>
<li><a href='http://novelpatient.com/2009/03/25/numb/' rel='bookmark' title='Permanent Link: Numb'>Numb</a> <small>Literally. I bit my lip so hard I tasted blood, but felt no pain.  Most...</small></li>
<li><a href='http://novelpatient.com/2009/04/14/waiting-game-woes/' rel='bookmark' title='Permanent Link: Waiting Game Woes'>Waiting Game Woes</a> <small>So I'm supposed to be starting a new treatment - Rituxin infusions, and I've been...</small></li>
</ol></p>]]></content:encoded>
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