Things have been emotionally rough and raw lately. Lot’s of things are in transition. Relationships in flux. And I’m still stuck in the hospital (33 consecutive days and 39 total days in the hospital by my count). I’m trying to think of it as being 39 days closer to being released from the hospital. It doesn’t work that well though. But cheery flowers like these ones I got from my Great Aunt and Cousins brightened my room and my mood.
Tests a trickling in and no definitive diagnosis concerning the cause of my brain stem inflammation is yet emerging.
So I was especially pleasantly surprised to receive this cuddly visitor today. It was just what the doctor ordered.
In the midst of confusion, I often turn to poetry to help capture my thoughts. I wrote this one in about ten minutes, and I rather like it. An emotional moment forever frozen like a bug trapped in amber.
A Place For Him
by Lauren Soffer
Life can be wild
Wonder is lost on this child
So she goes it alone
As she makes her way home
But the time she tripped
And she didn’t fall
A silent scream
Yet He heard the call
Still She goes it alone
As she makes her way home
Not ready
Not ready to let go
Not ready
For a hand to hold
Cause even crying all alone
At least she knows
It’s all she knows
Life can be wild
Wonder is lost on this child
This girl must
Grow up
Not a child anymore
Stand up
Reach out a hand
Lift up
Her heart till it holds
Always
A place for Him
EDIT: Last night my friends Spencer, Kristi, and I had a blast in my hospital room writing music to my lyrics. Here’s a REALLY rough take of it – complete with my voice still completely hoarse from an allergic reaction and nasal from having a feeding tube up my nose. Hehe. So forgive my lack of ability to hit any of the notes right now, but I at least wanted to give you the idea.
There are two ways to look at everything. Like dark and light. Like black and white. Positive or negative. There are two ways to view every situation life throws your way.
People often ask me how I maintain such a positive attitude despite all I go through. I tell them that first of all life is too short to spend being unhappy. Besides… I have two choices. I can be sick and miserable or I can be sick and happy. The choice is mine. And I chose to be sick and happy!
It’s a sort of double vision as I see it. There are two ways to look at every situation. And right now I literally am experiencing double vision. I am also having extreme difficulty lifting and moving my left leg.
Yesterday I saw a neurologist here in the hospital. (Yes I am STILL in the hospital – 21st consecutive day and 27th total day.) And he thinks that one of two things is going on. Either I have an ongoing chronic probably Autoimmune neurological disease causing this and my other neurological problems. If this is the case it might be something like Multiple Sclerosis or something similar. Otherwise I might have had a one time incident a few years ago when I couldn’t move either of my legs for a month that left me with permanent damage. Either way the infections I’ve been fighting has been exacerbating my symptoms.
While we are trying to figure things out my neurologist gave me an eye patch so that my double vision is reduced by looking out of only one eye. Now I can see more clearly. And what I see is this…
I could curl up into a ball and cry about having another serious health problem – a health problem that is effecting not only my vision but my mobility and my cognitive abilities. Or I can realize that I already have had this problem either way. Now I’ll finally hopefully have a name to put to it and a way to treat it and make it better and easier to live with!
Looking like a pirate with my eye patch (ARRRRRR), I no longer have double vision. My vision is clear (despite the fact that it is still a bit blurry even with my glasses). So I can clearly see that I have a choice in how I view my situation. And I chose to deal with it with strong faith that things with be okay somehow as long as I choose happiness every time!