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	<title>Novel Patient &#187; dinner</title>
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		<title>Love Bug</title>
		<link>http://novelpatient.com/2010/04/16/love-bug/</link>
		<comments>http://novelpatient.com/2010/04/16/love-bug/#comments</comments>
		<pubDate>Sat, 17 Apr 2010 06:12:31 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<description><![CDATA[Relationships are complicated enough, but adding chronic illnesses into the mix increases complications exponentially.  In fact, being bitten by the love bug leads to all sorts of symptoms, side effects, and potential complications.


Related posts:<ol><li><a href='http://novelpatient.com/2010/04/04/full-disclosure/' rel='bookmark' title='Permanent Link: Full Disclosure'>Full Disclosure</a> <small>Before I was in a wheelchair and now a walker, my illness was pretty invisible....</small></li>
<li><a href='http://novelpatient.com/2010/02/16/dependency/' rel='bookmark' title='Permanent Link: Dependency'>Dependency</a> <small>Having a chronic illness can rob you of your independence. Suddenly you find yourself dependent...</small></li>
<li><a href='http://novelpatient.com/2009/08/31/30-things-about-my-invisible-illness-you-may-not-know/' rel='bookmark' title='Permanent Link: 30 Things About My Invisible Illness You May Not Know'>30 Things About My Invisible Illness You May Not Know</a> <small>The illness I live with is:  Sjogren's Syndrome, but I also have Autoimmune Pancreatitis, Autoimmune...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[<p><a title="Broken Heart by Gabriela Camerotti, on Flickr" href="http://www.flickr.com/photos/face_it/900673849/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/900673849_7bb4d8b362.jpg" alt="Broken Heart" width="261" height="231" align="right" /></a>Relationships are complicated enough, but adding chronic illnesses into the mix increases complications exponentially.  In fact, being bitten by the love bug leads to all sorts of symptoms, side effects, and potential complications.</p>
<p>It&#8217;s been a long time since I&#8217;ve let myself like a guy.  So imagine my  surprise to find myself with a good old fashioned crush on someone.  But I have all the symptoms of a crush.  Fluttering in my chest.  Racing heart.  Warmth in my cheeks.  Funny feeling in the pit of my stomach when I think about if he might like me back.  But it&#8217;s also brought up a lot of confused feelings &#8211; some not so pleasant.</p>
<p>I feel so inadequate because of my illness.  Why would he want me when he could have countless girls who are whole and healthy?</p>
<p><a title="heart medication by pine apple lime, on Flickr" href="http://www.flickr.com/photos/pineapplelime/525442467/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/525442467_0fbb104501.jpg" alt="heart medication" width="256" height="383" align="left" /></a>Dating me would mean dealing with all my limitations that even I don&#8217;t want to deal with &#8211; side effects if you will.  It would begin with setting the date pending me feeling up to attending.  Not being able to keep plans because of my illness has caused problems even with my closest friends.  Breaking a date wouldn&#8217;t exactly be the way I&#8217;d want to start a new relationship, but the possibility is a reality that would come with dating me.  Then when he&#8217;d pick me up we&#8217;d have to lug my wheelchair or walker on the date.  The first thing I want to explain to him would hardly be how to assemble my wheelchair.  At dinner he&#8217;d get a full education on my eating difficulties as I filled the waiter in on my food allergies and took pills with dinner that would allow me to digest my food.  Sounds like a pretty mortifying first date in all honesty.</p>
<p>I worry that I wouldn&#8217;t be able to do his favorite activities with who ever I date.  I can&#8217;t even do my favorite activities anymore.  I can&#8217;t go hiking or horseback riding or play tennis.  What if physical activities are an important part if his life?  How would I ever share that with him?</p>
<p>And then there&#8217;s the issue of feeling inadequate due to my appearance.  I&#8217;ve put on 150 pounds from being on steroids (Prednisone) to control my autoimmune diseases.  Though I&#8217;ve now lost a small portion of it, I still feel so physically unattractive.  Not to mention the horrible acne and hair growing in strange places the same medication has also caused.  I so desperately want to be thin again and have clear skin again if only so I will be physically appealing to guys again.</p>
<p><a title="lⓄve by rOzα, on Flickr" href="http://www.flickr.com/photos/rose-/3284587256/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/3284587256_611e0b2391.jpg" alt="lⓄve" width="275" height="243" align="right" /></a>Then if things do work out after the initial shock of dating someone with chronic illnesses, there&#8217;s still all the complications that can arise down the road.  What if he gets tired of dealing with the day to day struggle of my illness?  If we someday get serious and get married, the reality is that having children and even sex itself can be difficult with a chronic and painful illness.  If we did have children, would I even have the energy to raise them?</p>
<p>I know.  I know.  Now I&#8217;m getting way ahead of myself.  But I don&#8217;t really know what else to say.  It feels like nothing I can say will explain how horribly inadequate my illness makes me feel.  I barely have the energy to be a good friend sometimes let alone a good girlfriend.</p>
<p>I hope that someday I find someone who can look past my illness and see me.  But until then I can&#8217;t help wishing that the love bug didn&#8217;t even bite me in the first place.<br />
<a title="love bug by Mandi White - www.photosbymandi.com, on Flickr" href="http://www.flickr.com/photos/mandilane/4407811779/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/4407811779_802d20f911.jpg" alt="love bug" width="425" height="425" align="center" /></a></p>
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<p><strong>Recent Comments:</strong>
<ul class="recent-comments">
<li><a href="http://novelpatient.com/2009/09/09/10-ways-to-stay-organized-with-a-chronic-illness/#comment-9859" rel="bookmark" title="March 14, 2012 at 6:33 pm"><span class="rc-commenter">Deborah Anderson</span> commented on <span class="rc-title">10 Ways To Stay Organized With A Chronic Illness</span></a> As a professional organizer, I can offer these tips in helping you be organized while managing pain.</li>
<li><a href="http://novelpatient.com/2009/11/15/visualizing-symptoms/#comment-9779" rel="bookmark" title="February 25, 2012 at 4:55 pm"><span class="rc-commenter">KatieM</span> commented on <span class="rc-title">Visualizing Symptoms</span></a> Hi Lauren, thanks for this. I am working on a similar project and would love to talk to you about st</li>
<li><a href="http://novelpatient.com/2011/06/12/scrapaganza/#comment-9307" rel="bookmark" title="November 28, 2011 at 11:23 am"><span class="rc-commenter">Meditours</span> commented on <span class="rc-title">Scrapaganza</span></a> Meditours is committed to providing medical treatments of the highest medical standards today by wor</li>
<li><a href="http://novelpatient.com/2010/04/07/fear/#comment-9294" rel="bookmark" title="November 23, 2011 at 9:00 pm"><span class="rc-commenter">68mu79d</span> commented on <span class="rc-title">Fear</span></a> </li>
<li><a href="http://novelpatient.com/2010/10/03/an-update-and-a-big-thanks/#comment-9212" rel="bookmark" title="October 25, 2011 at 7:35 am"><span class="rc-commenter">anna y</span> commented on <span class="rc-title">An Update and a Big THANKS!!!</span></a> you inspire me. i have no idea how i came across your blog&#8230; probably through some of my crazy goog</li>
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/04/04/full-disclosure/' rel='bookmark' title='Permanent Link: Full Disclosure'>Full Disclosure</a> <small>Before I was in a wheelchair and now a walker, my illness was pretty invisible....</small></li>
<li><a href='http://novelpatient.com/2010/02/16/dependency/' rel='bookmark' title='Permanent Link: Dependency'>Dependency</a> <small>Having a chronic illness can rob you of your independence. Suddenly you find yourself dependent...</small></li>
<li><a href='http://novelpatient.com/2009/08/31/30-things-about-my-invisible-illness-you-may-not-know/' rel='bookmark' title='Permanent Link: 30 Things About My Invisible Illness You May Not Know'>30 Things About My Invisible Illness You May Not Know</a> <small>The illness I live with is:  Sjogren's Syndrome, but I also have Autoimmune Pancreatitis, Autoimmune...</small></li>
</ol></p>]]></content:encoded>
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		<title>Wheelchair Dance</title>
		<link>http://novelpatient.com/2010/01/17/wheelchair-dance/</link>
		<comments>http://novelpatient.com/2010/01/17/wheelchair-dance/#comments</comments>
		<pubDate>Sun, 17 Jan 2010 08:20:03 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<description><![CDATA[Tonight I wheelchair danced. But that's not where this story starts. Once upon a time, I was afraid of dancing.  In fact, for most of my life I was afraid of dancing.  I never was super coordinated and I certainly lacked natural rhythm.  I w Share Related posts:A New Look Sometimes things come crashing down [...]


Related posts:<ol><li><a href='http://novelpatient.com/2009/08/25/a-new-look/' rel='bookmark' title='Permanent Link: A New Look'>A New Look</a> <small>Sometimes things come crashing down emotionally.  I didn't realize what an emotional toll being so...</small></li>
<li><a href='http://novelpatient.com/2009/12/09/blogiversary-a-belated-thanksgiving/' rel='bookmark' title='Permanent Link: Blogiversary: A Belated Thanksgiving'>Blogiversary: A Belated Thanksgiving</a> <small>When you are sick all the time you often have to (sometimes unwilling) rely on...</small></li>
<li><a href='http://novelpatient.com/2009/03/25/numb/' rel='bookmark' title='Permanent Link: Numb'>Numb</a> <small>Literally. I bit my lip so hard I tasted blood, but felt no pain.  Most...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[Tonight I wheelchair danced.

But that's not where this story starts.

Once upon a time, I was afraid of dancing.  In fact, for most of my life I was afraid of dancing.  I never was super coordinated and I certainly lacked natural rhythm.  I w
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2009/08/25/a-new-look/' rel='bookmark' title='Permanent Link: A New Look'>A New Look</a> <small>Sometimes things come crashing down emotionally.  I didn't realize what an emotional toll being so...</small></li>
<li><a href='http://novelpatient.com/2009/12/09/blogiversary-a-belated-thanksgiving/' rel='bookmark' title='Permanent Link: Blogiversary: A Belated Thanksgiving'>Blogiversary: A Belated Thanksgiving</a> <small>When you are sick all the time you often have to (sometimes unwilling) rely on...</small></li>
<li><a href='http://novelpatient.com/2009/03/25/numb/' rel='bookmark' title='Permanent Link: Numb'>Numb</a> <small>Literally. I bit my lip so hard I tasted blood, but felt no pain.  Most...</small></li>
</ol></p>]]></content:encoded>
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