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	<title>Novel Patient &#187; Freedom</title>
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		<title>Definitions: More Than Just a Novel Patient</title>
		<link>http://novelpatient.com/2010/08/17/definitions-more-than-just-a-novel-patient/</link>
		<comments>http://novelpatient.com/2010/08/17/definitions-more-than-just-a-novel-patient/#comments</comments>
		<pubDate>Tue, 17 Aug 2010 19:21:57 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
				<category><![CDATA[Awareness]]></category>
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		<category><![CDATA[Lauren]]></category>
		<category><![CDATA[Lauren Soffer]]></category>
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		<category><![CDATA[writing a novel]]></category>

		<guid isPermaLink="false">http://novelpatient.com/?p=898</guid>
		<description><![CDATA[There are many things that define me a Novel Patient, mainly my collection of unusual illnesses, symptoms and side effects.  But one of them has nothing to do with being sick.  If you recall last November, I started writing a novel.  As I've been writing this novel I've been thinking lately about how I define myself.  So much of my life revolves around and is affected by my illness that it can sometimes feel that that is all I am.  But that is not how I want to be defined.


Related posts:<ol><li><a href='http://novelpatient.com/2010/02/09/keeping-the-faith/' rel='bookmark' title='Permanent Link: Keeping The Faith'>Keeping The Faith</a> <small>Through my chronic illness, I have come to realize how crucial it is to have...</small></li>
<li><a href='http://novelpatient.com/2010/05/23/a-place-for-him/' rel='bookmark' title='Permanent Link: A Place For Him'>A Place For Him</a> <small>Things have been emotionally rough and raw lately.  Lot's of things are in transition.  Relationships...</small></li>
<li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[<p><a href="http://novelpatient.com/wp-content/uploads/2010/10/Elevator-Cover.png" rel="shadowbox[post-898];player=img;"><img class="alignleft size-full wp-image-902" title="Elevator-Cover" src="http://novelpatient.com/wp-content/uploads/2010/10/Elevator-Cover.png" alt="" width="180" height="300" align="left" /></a>There are many things that define me a Novel Patient, mainly my collection of unusual illnesses, symptoms and side effects.  But one of them has nothing to do with being sick.  If you recall last November, I started writing a novel.  It&#8217;s working title is The Alone Elevator.  It&#8217;s a coming of age story set in a <a class="zem_slink freebase/en/dystopia" title="Dystopia" rel="wikipedia" href="http://en.wikipedia.org/wiki/Dystopia">dystopian</a> future about the pains and trials of going up and the importance of the freedom to think for yourself.  Here&#8217;s a brief summary:</p>
<blockquote><p>Chosen  to attend the prestigious Riddlebane Academy, Kylie Lockmore soon  learns secrets that turn her world upside-down.  From the drug her  grandmother invented to control the populace to the missing sister she  never knew she had, Kylie is forced to question the truth and decide  where she stands.</p></blockquote>
<p><a title="Wheelchair II by Slim Letaief, on Flickr" href="http://www.flickr.com/photos/snocturnus/3954352662/"><img src="http://novelpatient.com/wp-content/uploads/2010/10/3954352662_018221e744.jpg" alt="Wheelchair II" width="183" height="274" align="right" /></a>As I&#8217;ve been writing this novel I&#8217;ve been thinking lately about how I define myself.  So much of my life revolves around and is affected by my illness that it can sometimes feel that that is all I am.  But that is not how I want to be defined.  I am more than a sum of doctors appointments and hospital stays, symptoms and side effects, walkers and wheelchairs.  There are so many other things that define me.  And it occurs to me how important it is that I remember that.  I am a creative thinking feeling being.  I am a graphic and web designer, a scrapbooker, a novelist.  I am a daughter, a sister, a friend, a child of God.  I am so much more than just a &#8220;Novel Patient&#8221;.<br />
<a title="Untitled by Lauren Soffer, on Flickr" href="http://www.flickr.com/photos/ineffabelle/4899597466/"><img src="http://novelpatient.com/wp-content/uploads/2010/10/4899597466_6801f1cd0c.jpg" alt="" width="425" height="396" align="center" /></a><br />
But how do others see me?  Do they see just a &#8220;sick girl&#8221; with a walker?  Or do they see the real me?  I think that the more I define myself as I want to be defined the more people will see the me I want them to see.  If I focus on being a patient that is what will define me.  But if I focus on being a Novel PERSON&#8230;  well that is what I will be and radiate to the world.</p>
<p>Here is an excerpt from the first draft of my novel:</p>
<p><a style="margin: 12px auto 6px auto; font-family: Helvetica,Arial,Sans-serif; font-style: normal; font-variant: normal; font-weight: normal; font-size: 14px; line-height: normal; font-size-adjust: none; font-stretch: normal; -x-system-font: none; display: block; text-decoration: underline;" title="View The Alone Elevator Chapter 1 Excerpt on Scribd" href="http://www.scribd.com/doc/36020992/The-Alone-Elevator-Chapter-1-Excerpt">The Alone Elevator Chapter 1 Excerpt</a> <object id="doc_927965581021309" style="outline: none;" classid="clsid:d27cdb6e-ae6d-11cf-96b8-444553540000" width="450" height="400" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"><param name="name" value="doc_927965581021309" /><param name="data" value="http://d1.scribdassets.com/ScribdViewer.swf" /><param name="wmode" value="opaque" /><param name="bgcolor" value="#ffffff" /><param name="allowFullScreen" value="true" /><param name="allowScriptAccess" value="always" /><param name="FlashVars" value="document_id=36020992&amp;access_key=key-2g4sb13194g64oogju4t&amp;page=1&amp;viewMode=list" /><param name="src" value="http://d1.scribdassets.com/ScribdViewer.swf" /><param name="allowfullscreen" value="true" /><param name="flashvars" value="document_id=36020992&amp;access_key=key-2g4sb13194g64oogju4t&amp;page=1&amp;viewMode=list" /><embed id="doc_927965581021309" style="outline: none;" type="application/x-shockwave-flash" width="450" height="400" src="http://d1.scribdassets.com/ScribdViewer.swf" flashvars="document_id=36020992&amp;access_key=key-2g4sb13194g64oogju4t&amp;page=1&amp;viewMode=list" allowscriptaccess="always" allowfullscreen="true" bgcolor="#ffffff" wmode="opaque" data="http://d1.scribdassets.com/ScribdViewer.swf" name="doc_927965581021309"></embed></object></p>
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<p><strong>Recent Comments:</strong>
<ul class="recent-comments">
<li><a href="http://novelpatient.com/2009/09/09/10-ways-to-stay-organized-with-a-chronic-illness/#comment-9859" rel="bookmark" title="March 14, 2012 at 6:33 pm"><span class="rc-commenter">Deborah Anderson</span> commented on <span class="rc-title">10 Ways To Stay Organized With A Chronic Illness</span></a> As a professional organizer, I can offer these tips in helping you be organized while managing pain.</li>
<li><a href="http://novelpatient.com/2009/11/15/visualizing-symptoms/#comment-9779" rel="bookmark" title="February 25, 2012 at 4:55 pm"><span class="rc-commenter">KatieM</span> commented on <span class="rc-title">Visualizing Symptoms</span></a> Hi Lauren, thanks for this. I am working on a similar project and would love to talk to you about st</li>
<li><a href="http://novelpatient.com/2011/06/12/scrapaganza/#comment-9307" rel="bookmark" title="November 28, 2011 at 11:23 am"><span class="rc-commenter">Meditours</span> commented on <span class="rc-title">Scrapaganza</span></a> Meditours is committed to providing medical treatments of the highest medical standards today by wor</li>
<li><a href="http://novelpatient.com/2010/04/07/fear/#comment-9294" rel="bookmark" title="November 23, 2011 at 9:00 pm"><span class="rc-commenter">68mu79d</span> commented on <span class="rc-title">Fear</span></a> </li>
<li><a href="http://novelpatient.com/2010/10/03/an-update-and-a-big-thanks/#comment-9212" rel="bookmark" title="October 25, 2011 at 7:35 am"><span class="rc-commenter">anna y</span> commented on <span class="rc-title">An Update and a Big THANKS!!!</span></a> you inspire me. i have no idea how i came across your blog&#8230; probably through some of my crazy goog</li>
</ul>
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/02/09/keeping-the-faith/' rel='bookmark' title='Permanent Link: Keeping The Faith'>Keeping The Faith</a> <small>Through my chronic illness, I have come to realize how crucial it is to have...</small></li>
<li><a href='http://novelpatient.com/2010/05/23/a-place-for-him/' rel='bookmark' title='Permanent Link: A Place For Him'>A Place For Him</a> <small>Things have been emotionally rough and raw lately.  Lot's of things are in transition.  Relationships...</small></li>
<li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
</ol></p>]]></content:encoded>
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		<title>Freedom Drive</title>
		<link>http://novelpatient.com/2010/01/26/freedom-drive/</link>
		<comments>http://novelpatient.com/2010/01/26/freedom-drive/#comments</comments>
		<pubDate>Wed, 27 Jan 2010 01:06:35 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
				<category><![CDATA[Chronic Illness]]></category>
		<category><![CDATA[Life Issues]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Accessible]]></category>
		<category><![CDATA[blog]]></category>
		<category><![CDATA[Danielle]]></category>
		<category><![CDATA[Drive]]></category>
		<category><![CDATA[Facebook]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[Freedom]]></category>
		<category><![CDATA[friends and family]]></category>
		<category><![CDATA[fundraiser]]></category>
		<category><![CDATA[help]]></category>
		<category><![CDATA[medical expenses]]></category>
		<category><![CDATA[MySpace]]></category>
		<category><![CDATA[option]]></category>
		<category><![CDATA[pain]]></category>
		<category><![CDATA[personal freedoms]]></category>
		<category><![CDATA[place]]></category>
		<category><![CDATA[share]]></category>
		<category><![CDATA[sister]]></category>
		<category><![CDATA[support freedom]]></category>
		<category><![CDATA[Twitter]]></category>
		<category><![CDATA[Vehicle]]></category>
		<category><![CDATA[wheelchair]]></category>
		<category><![CDATA[wheelchair accessible vehicle]]></category>

		<guid isPermaLink="false">http://novelpatient.com/?p=511</guid>
		<description><![CDATA[So today my sister Danielle started what we are calling my Freedom Drive - a fundraiser to help me buy a wheelchair accessible vehicle (as well as help with my other medical expenses).


Related posts:<ol><li><a href='http://novelpatient.com/2009/12/16/seeking-an-accessible-vehicle/' rel='bookmark' title='Permanent Link: Seeking an Accessible Vehicle'>Seeking an Accessible Vehicle</a> <small>While dealing with the emotions that come with getting a permanent wheelchair, Novel Patient tries...</small></li>
<li><a href='http://novelpatient.com/2009/07/26/invisible-illness-week/' rel='bookmark' title='Permanent Link: Invisible Illness Week &#8211; An Interview With Lisa Copen'>Invisible Illness Week &#8211; An Interview With Lisa Copen</a> <small>Lisa Copen joins us today for an interview as the founder of National Invisible Chronic...</small></li>
<li><a href='http://novelpatient.com/2009/12/09/blogiversary-a-belated-thanksgiving/' rel='bookmark' title='Permanent Link: Blogiversary: A Belated Thanksgiving'>Blogiversary: A Belated Thanksgiving</a> <small>When you are sick all the time you often have to (sometimes unwilling) rely on...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[<p><span style="color: #000000;"><a href="http://novelpatient.com/wp-content/uploads/2010/01/honda-conversion.jpg" rel="shadowbox[post-511];player=img;"><img class="size-full wp-image-512 alignright" title="My Dream Accessible Vehicle" src="http://novelpatient.com/wp-content/uploads/2010/01/honda-conversion.jpg" alt="My Dream Accessible Vehicle" width="266" height="144" align="right" /></a></span></p>
<p><span style="color: #000000;"><em><strong>Freedom is something that is often taken for granted.</strong></em> Freedom comes in a lot of different varieties and all are often taken lightly until you don&#8217;t have that freedom anymore.  Until I got sick I took so many very personal freedoms for granted.  I especially took for granted the freedom to move around  where I want unassisted by a wheelchair and the freedom to drive to any place I wanted.</span></p>
<p><span style="color: #000000;">Now that I can&#8217;t walk and I can&#8217;t drive, those are things that are no longer taken for granted.  And now I am constantly searching for ways to increase my freedoms once more.</span></p>
<p><span style="color: #000000;">Soon I will be getting a specially designed wheelchair that will allow me to be up out of bed in it without being in pain like I am in my current wheelchair.  However, this new wheelchair can only be transported by a wheelchair accessible vehicle, something I cannot afford.</span></p>
<p><span style="color: #000000;"><strong>So today my sister Danielle started what we are calling my <a title="Click To Donate or Help Spread the Word!" href="http://www.giveforward.org/freedomdrive/" target="_blank">Freedom Drive</a> &#8211; a fundraiser to help me buy a wheelchair accessible vehicle (as well as help with my other medical expenses).</strong></span></p>
<p><span style="color: #000000;"><strong>Please consider donating, and, if that isn&#8217;t an option, please share this link with as many people as you can.  Please post it to <a class="zem_slink freebase/en/twitter" title="Twitter" rel="homepage" href="http://twitter.com">Twitter</a>, <a class="zem_slink freebase/en/facebook" title="Facebook" rel="homepage" href="http://facebook.com">Facebook</a>, and <a class="zem_slink freebase/en/myspace" title="MySpace" rel="homepage" href="http://myspace.com">MySpace</a>,  email it to your friends and family, or even blog about it!  Thank you so much for all your help and support!!!</strong></span></p>
<h4><span style="color: #000000;"><a href="http://www.giveforward.org/freedomdrive/" target="_blank"><strong>http://www.giveforward.org/freedomdrive/</strong></a></span></h4>
<p><span style="color: #000000;"><strong><a href="http://www.facebook.com/pages/Laurens-Freedom-Drive/270340999718?v=info" target="_blank">Join the Facebook Freedom Drive Fan Page!</a><br />
</strong></span></p>
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<p><strong>Recent Comments:</strong>
<ul class="recent-comments">
<li><a href="http://novelpatient.com/2009/09/09/10-ways-to-stay-organized-with-a-chronic-illness/#comment-9859" rel="bookmark" title="March 14, 2012 at 6:33 pm"><span class="rc-commenter">Deborah Anderson</span> commented on <span class="rc-title">10 Ways To Stay Organized With A Chronic Illness</span></a> As a professional organizer, I can offer these tips in helping you be organized while managing pain.</li>
<li><a href="http://novelpatient.com/2009/11/15/visualizing-symptoms/#comment-9779" rel="bookmark" title="February 25, 2012 at 4:55 pm"><span class="rc-commenter">KatieM</span> commented on <span class="rc-title">Visualizing Symptoms</span></a> Hi Lauren, thanks for this. I am working on a similar project and would love to talk to you about st</li>
<li><a href="http://novelpatient.com/2011/06/12/scrapaganza/#comment-9307" rel="bookmark" title="November 28, 2011 at 11:23 am"><span class="rc-commenter">Meditours</span> commented on <span class="rc-title">Scrapaganza</span></a> Meditours is committed to providing medical treatments of the highest medical standards today by wor</li>
<li><a href="http://novelpatient.com/2010/04/07/fear/#comment-9294" rel="bookmark" title="November 23, 2011 at 9:00 pm"><span class="rc-commenter">68mu79d</span> commented on <span class="rc-title">Fear</span></a> </li>
<li><a href="http://novelpatient.com/2010/10/03/an-update-and-a-big-thanks/#comment-9212" rel="bookmark" title="October 25, 2011 at 7:35 am"><span class="rc-commenter">anna y</span> commented on <span class="rc-title">An Update and a Big THANKS!!!</span></a> you inspire me. i have no idea how i came across your blog&#8230; probably through some of my crazy goog</li>
</ul>
<p><!-- Recent Comments took 74.086 ms --></p>
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