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	<title>Novel Patient &#187; hope</title>
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		<title>Happy February 14th!</title>
		<link>http://novelpatient.com/2011/02/14/happy-february-14th/</link>
		<comments>http://novelpatient.com/2011/02/14/happy-february-14th/#comments</comments>
		<pubDate>Mon, 14 Feb 2011 08:01:37 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
				<category><![CDATA[Awareness]]></category>
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		<category><![CDATA[Writing]]></category>
		<category><![CDATA[allergy]]></category>
		<category><![CDATA[bridesmaid]]></category>
		<category><![CDATA[candlelight]]></category>
		<category><![CDATA[candy hearts]]></category>
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		<category><![CDATA[different song]]></category>
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		<category><![CDATA[relationship]]></category>
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		<category><![CDATA[romantic relationships]]></category>
		<category><![CDATA[romeo]]></category>
		<category><![CDATA[roses]]></category>
		<category><![CDATA[single awareness day]]></category>
		<category><![CDATA[valentine s day]]></category>
		<category><![CDATA[Valentine's Day]]></category>
		<category><![CDATA[walker]]></category>
		<category><![CDATA[weight]]></category>
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		<guid isPermaLink="false">http://novelpatient.com/?p=1088</guid>
		<description><![CDATA[Single Awareness Day (also known as Valentine&#8217;s Day) is upon us!  Relationships (or the lack there of) are on the mind.  Relationships are hard.  Romantic relationships are harder.  Even for healthy people.  Having a chronic illness makes it that much more complicated.  It&#8217;s hard not to feel undesirable&#8230; broken.  I know the &#8220;right guy&#8221; will [...]


Related posts:<ol><li><a href='http://novelpatient.com/2010/04/16/love-bug/' rel='bookmark' title='Permanent Link: Love Bug'>Love Bug</a> <small>Relationships are complicated enough, but adding chronic illnesses into the mix increases complications exponentially. In...</small></li>
<li><a href='http://novelpatient.com/2009/09/14/visible/' rel='bookmark' title='Permanent Link: Visible'>Visible</a> <small>Today is the first day of National Invisible Chronic Illness Awareness Week, and it has...</small></li>
<li><a href='http://novelpatient.com/2010/04/04/full-disclosure/' rel='bookmark' title='Permanent Link: Full Disclosure'>Full Disclosure</a> <small>Before I was in a wheelchair and now a walker, my illness was pretty invisible....</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[

Single Awareness Day (also known as Valentine's Day) is upon us!  Relationships (or the lack there of) are on the mind.  Relationships are hard.  Romantic relationships are harder.  Even for healthy people.  Having a chronic illness makes it
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/04/16/love-bug/' rel='bookmark' title='Permanent Link: Love Bug'>Love Bug</a> <small>Relationships are complicated enough, but adding chronic illnesses into the mix increases complications exponentially. In...</small></li>
<li><a href='http://novelpatient.com/2009/09/14/visible/' rel='bookmark' title='Permanent Link: Visible'>Visible</a> <small>Today is the first day of National Invisible Chronic Illness Awareness Week, and it has...</small></li>
<li><a href='http://novelpatient.com/2010/04/04/full-disclosure/' rel='bookmark' title='Permanent Link: Full Disclosure'>Full Disclosure</a> <small>Before I was in a wheelchair and now a walker, my illness was pretty invisible....</small></li>
</ol></p>]]></content:encoded>
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		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>Recovery Blues</title>
		<link>http://novelpatient.com/2010/12/03/recovery-blues/</link>
		<comments>http://novelpatient.com/2010/12/03/recovery-blues/#comments</comments>
		<pubDate>Sat, 04 Dec 2010 04:26:47 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
				<category><![CDATA[Awareness]]></category>
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		<category><![CDATA[Appointment]]></category>
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		<category><![CDATA[autoimmune]]></category>
		<category><![CDATA[autoimmune disease]]></category>
		<category><![CDATA[autoimmune disorders]]></category>
		<category><![CDATA[balance]]></category>
		<category><![CDATA[Bar and Bat Mitzvah]]></category>
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		<category><![CDATA[share]]></category>
		<category><![CDATA[sjogren's syndrome]]></category>
		<category><![CDATA[thanksgiving]]></category>
		<category><![CDATA[time]]></category>
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		<category><![CDATA[week]]></category>

		<guid isPermaLink="false">http://novelpatient.com/?p=1066</guid>
		<description><![CDATA[The recovery process after a long hospitalization can be long, boring, and frankly difficult on so many levels.  Yes, I said after a long hospitalization.  I'm pleased to share I'll have been home three weeks on Monday!  And while being home is an Share Related posts:Sjogren&#8217;s Syndrome Awareness Month As the month draws to a [...]


Related posts:<ol><li><a href='http://novelpatient.com/2010/04/26/sjogrens-syndrome-awareness-month-3/' rel='bookmark' title='Permanent Link: Sjogren&#8217;s Syndrome Awareness Month'>Sjogren&#8217;s Syndrome Awareness Month</a> <small>As the month draws to a close, I am reminded that April is Sjogren's Syndrome...</small></li>
<li><a href='http://novelpatient.com/2010/08/17/definitions-more-than-just-a-novel-patient/' rel='bookmark' title='Permanent Link: Definitions: More Than Just a Novel Patient'>Definitions: More Than Just a Novel Patient</a> <small>There are many things that define me a Novel Patient, mainly my collection of unusual...</small></li>
<li><a href='http://novelpatient.com/2010/02/09/keeping-the-faith/' rel='bookmark' title='Permanent Link: Keeping The Faith'>Keeping The Faith</a> <small>Through my chronic illness, I have come to realize how crucial it is to have...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[The recovery process after a long hospitalization can be long, boring, and frankly difficult on so many levels.  Yes, I said after a long hospitalization.  I'm pleased to share I'll have been home three weeks on Monday!  And while being home is an
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/04/26/sjogrens-syndrome-awareness-month-3/' rel='bookmark' title='Permanent Link: Sjogren&#8217;s Syndrome Awareness Month'>Sjogren&#8217;s Syndrome Awareness Month</a> <small>As the month draws to a close, I am reminded that April is Sjogren's Syndrome...</small></li>
<li><a href='http://novelpatient.com/2010/08/17/definitions-more-than-just-a-novel-patient/' rel='bookmark' title='Permanent Link: Definitions: More Than Just a Novel Patient'>Definitions: More Than Just a Novel Patient</a> <small>There are many things that define me a Novel Patient, mainly my collection of unusual...</small></li>
<li><a href='http://novelpatient.com/2010/02/09/keeping-the-faith/' rel='bookmark' title='Permanent Link: Keeping The Faith'>Keeping The Faith</a> <small>Through my chronic illness, I have come to realize how crucial it is to have...</small></li>
</ol></p>]]></content:encoded>
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		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Trapped on a Pedestal</title>
		<link>http://novelpatient.com/2010/11/11/trapped-on-a-pedestal/</link>
		<comments>http://novelpatient.com/2010/11/11/trapped-on-a-pedestal/#comments</comments>
		<pubDate>Thu, 11 Nov 2010 23:35:59 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
				<category><![CDATA[Awareness]]></category>
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		<category><![CDATA[balancing act]]></category>
		<category><![CDATA[cry]]></category>
		<category><![CDATA[Fear]]></category>
		<category><![CDATA[Fearless]]></category>
		<category><![CDATA[feeling]]></category>
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		<category><![CDATA[young woman]]></category>

		<guid isPermaLink="false">http://novelpatient.com/?p=1050</guid>
		<description><![CDATA[This isn't one of those happy inspiring posts I often do.  Why?  Well, right now I'm not feeling happy or inspiring.  I'm feeling depressed and frustrated with the world.  Today marks the 8th week of my stay in the hospital.  From here on out I' Share Related posts:Shattered Trust I'm Daddy's little girl all grown [...]


Related posts:<ol><li><a href='http://novelpatient.com/2010/05/19/shattered-trust/' rel='bookmark' title='Permanent Link: Shattered Trust'>Shattered Trust</a> <small>I'm Daddy's little girl all grown up, but I still need my daddy.  I want...</small></li>
<li><a href='http://novelpatient.com/2010/09/13/too-young-invisible-illness-and-pain/' rel='bookmark' title='Permanent Link: Too Young: Invisible Illness and Pain'>Too Young: Invisible Illness and Pain</a> <small>"Too young." That is a phrase I have heard a lot in different contexts since...</small></li>
<li><a href='http://novelpatient.com/2010/04/07/fear/' rel='bookmark' title='Permanent Link: Fear'>Fear</a> <small>Fear and OCD are a bad combination. It's bad enough to have a fearful thought...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[This isn't one of those happy inspiring posts I often do.  Why?  Well, right now I'm not feeling happy or inspiring.  I'm feeling depressed and frustrated with the world.  Today marks the 8th week of my stay in the hospital.  From here on out I'
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/05/19/shattered-trust/' rel='bookmark' title='Permanent Link: Shattered Trust'>Shattered Trust</a> <small>I'm Daddy's little girl all grown up, but I still need my daddy.  I want...</small></li>
<li><a href='http://novelpatient.com/2010/09/13/too-young-invisible-illness-and-pain/' rel='bookmark' title='Permanent Link: Too Young: Invisible Illness and Pain'>Too Young: Invisible Illness and Pain</a> <small>"Too young." That is a phrase I have heard a lot in different contexts since...</small></li>
<li><a href='http://novelpatient.com/2010/04/07/fear/' rel='bookmark' title='Permanent Link: Fear'>Fear</a> <small>Fear and OCD are a bad combination. It's bad enough to have a fearful thought...</small></li>
</ol></p>]]></content:encoded>
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		<slash:comments>7</slash:comments>
		</item>
		<item>
		<title>Creatively Courageously Embracing Health</title>
		<link>http://novelpatient.com/2010/10/18/creatively-courageously-embracing-health/</link>
		<comments>http://novelpatient.com/2010/10/18/creatively-courageously-embracing-health/#comments</comments>
		<pubDate>Mon, 18 Oct 2010 22:59:46 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
				<category><![CDATA[Awareness]]></category>
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		<guid isPermaLink="false">http://novelpatient.com/?p=1027</guid>
		<description><![CDATA[This is not an easy thing for me to confess, so please be kind. I realized that I am afraid of getting better.  Not because I am afraid of being well; I want nothing more than to be well.  I am afraid of getting better because I am afraid that I Share Related posts:Myasthenia Gravis: [...]


Related posts:<ol><li><a href='http://novelpatient.com/2010/10/09/myasthenia-gravis/' rel='bookmark' title='Permanent Link: Myasthenia Gravis: A New Diagnosis Knocks Me From My Path'>Myasthenia Gravis: A New Diagnosis Knocks Me From My Path</a> <small>When you are living with multiple chronic illnesses things can quickly spiral out of control. ...</small></li>
<li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
<li><a href='http://novelpatient.com/2010/09/13/too-young-invisible-illness-and-pain/' rel='bookmark' title='Permanent Link: Too Young: Invisible Illness and Pain'>Too Young: Invisible Illness and Pain</a> <small>"Too young." That is a phrase I have heard a lot in different contexts since...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[This is not an easy thing for me to confess, so please be kind.

I realized that I am afraid of getting better.  Not because I am afraid of being well; I want nothing more than to be well.  I am afraid of getting better because I am afraid that I
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/10/09/myasthenia-gravis/' rel='bookmark' title='Permanent Link: Myasthenia Gravis: A New Diagnosis Knocks Me From My Path'>Myasthenia Gravis: A New Diagnosis Knocks Me From My Path</a> <small>When you are living with multiple chronic illnesses things can quickly spiral out of control. ...</small></li>
<li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
<li><a href='http://novelpatient.com/2010/09/13/too-young-invisible-illness-and-pain/' rel='bookmark' title='Permanent Link: Too Young: Invisible Illness and Pain'>Too Young: Invisible Illness and Pain</a> <small>"Too young." That is a phrase I have heard a lot in different contexts since...</small></li>
</ol></p>]]></content:encoded>
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		<title>Too Young: Invisible Illness and Pain</title>
		<link>http://novelpatient.com/2010/09/13/too-young-invisible-illness-and-pain/</link>
		<comments>http://novelpatient.com/2010/09/13/too-young-invisible-illness-and-pain/#comments</comments>
		<pubDate>Mon, 13 Sep 2010 18:47:12 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=958</guid>
		<description><![CDATA["Too young." That is a phrase I have heard a lot in different contexts since I've been dealing with chronic illness.  I've been told I'm "too young to be this sick", "too young to have to use a wheelchair", and "too young to have to use a walker" Share Related posts:Full Disclosure Before I was [...]


Related posts:<ol><li><a href='http://novelpatient.com/2010/04/04/full-disclosure/' rel='bookmark' title='Permanent Link: Full Disclosure'>Full Disclosure</a> <small>Before I was in a wheelchair and now a walker, my illness was pretty invisible....</small></li>
<li><a href='http://novelpatient.com/2009/08/31/30-things-about-my-invisible-illness-you-may-not-know/' rel='bookmark' title='Permanent Link: 30 Things About My Invisible Illness You May Not Know'>30 Things About My Invisible Illness You May Not Know</a> <small>The illness I live with is:  Sjogren's Syndrome, but I also have Autoimmune Pancreatitis, Autoimmune...</small></li>
<li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA["Too young."

That is a phrase I have heard a lot in different contexts since I've been dealing with chronic illness.  I've been told I'm "too young to be this sick", "too young to have to use a wheelchair", and "too young to have to use a walker"
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/04/04/full-disclosure/' rel='bookmark' title='Permanent Link: Full Disclosure'>Full Disclosure</a> <small>Before I was in a wheelchair and now a walker, my illness was pretty invisible....</small></li>
<li><a href='http://novelpatient.com/2009/08/31/30-things-about-my-invisible-illness-you-may-not-know/' rel='bookmark' title='Permanent Link: 30 Things About My Invisible Illness You May Not Know'>30 Things About My Invisible Illness You May Not Know</a> <small>The illness I live with is:  Sjogren's Syndrome, but I also have Autoimmune Pancreatitis, Autoimmune...</small></li>
<li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
</ol></p>]]></content:encoded>
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		<title>Progress!</title>
		<link>http://novelpatient.com/2010/07/11/progress/</link>
		<comments>http://novelpatient.com/2010/07/11/progress/#comments</comments>
		<pubDate>Mon, 12 Jul 2010 03:20:38 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=873</guid>
		<description><![CDATA[I've been home from the hospital for 45 days today I just realized, and I somehow managed to not blog once this whole time!  I feel terrible, and I hope I haven't worried anyone!  But I've been very busy recovering and living my life.  A novel thi Share Related posts:Walk By Faith Sunday was a [...]


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<li><a href='http://novelpatient.com/2010/02/09/keeping-the-faith/' rel='bookmark' title='Permanent Link: Keeping The Faith'>Keeping The Faith</a> <small>Through my chronic illness, I have come to realize how crucial it is to have...</small></li>
<li><a href='http://novelpatient.com/2010/03/27/better-enough/' rel='bookmark' title='Permanent Link: Better Enough?'>Better Enough?</a> <small>I'm well on my way on the road to recovery. I've been doing more and...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[I've been home from the hospital for 45 days today I just realized, and I somehow managed to not blog once this whole time!  I feel terrible, and I hope I haven't worried anyone!  But I've been very busy recovering and living my life.  A novel thi
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/03/09/walk-by-faith/' rel='bookmark' title='Permanent Link: Walk By Faith'>Walk By Faith</a> <small>Sunday was a small miracle in the grand scheme of things but not so small...</small></li>
<li><a href='http://novelpatient.com/2010/02/09/keeping-the-faith/' rel='bookmark' title='Permanent Link: Keeping The Faith'>Keeping The Faith</a> <small>Through my chronic illness, I have come to realize how crucial it is to have...</small></li>
<li><a href='http://novelpatient.com/2010/03/27/better-enough/' rel='bookmark' title='Permanent Link: Better Enough?'>Better Enough?</a> <small>I'm well on my way on the road to recovery. I've been doing more and...</small></li>
</ol></p><hr />
<p><small>© Novel Patient for <a href="http://novelpatient.com">Novel Patient</a>, 2010. |
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		<title>Seeing Double</title>
		<link>http://novelpatient.com/2010/05/12/seeing-double/</link>
		<comments>http://novelpatient.com/2010/05/12/seeing-double/#comments</comments>
		<pubDate>Thu, 13 May 2010 01:46:04 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=814</guid>
		<description><![CDATA[There are two ways to look at everything.  Like dark and light.  Like black and white.  Positive or negative.  There are two ways to view every situation life throws your way.

People often ask me how I maintain such a positive attitude despite all I go through.  I tell them that first of all life is too short to spend being unhappy.  Besides... I have two choices.  I can be sick and miserable or I can be sick and happy.  The choice is mine.  And I chose to be sick and happy!

It's a sort of double vision as I see it.  There are two ways to look at every situation.  And right now I literally am experiencing double vision.  I am also having extreme dificulty lifting and moving my left leg.


Related posts:<ol><li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
<li><a href='http://novelpatient.com/2010/02/16/dependency/' rel='bookmark' title='Permanent Link: Dependency'>Dependency</a> <small>Having a chronic illness can rob you of your independence. Suddenly you find yourself dependent...</small></li>
<li><a href='http://novelpatient.com/2010/05/05/hospital-update/' rel='bookmark' title='Permanent Link: Hospital Update'>Hospital Update</a> <small>I'm scared about tomorrow.  Tomorrow I have to get a feeding tube put in.  But...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[<h1><a href="http://novelpatient.com/wp-content/uploads/2010/05/Photo-on-2010-05-12-at-17.47.jpg" rel="shadowbox[post-814];player=img;"><img class="size-full wp-image-816 alignright" title="Black and White" src="http://novelpatient.com/wp-content/uploads/2010/05/Photo-on-2010-05-12-at-17.47.jpg" alt="" width="200" height="149" align="right" /></a></h1>
<h1><span style="color: #800080;">There are two ways to look at everything.  Like dark and light.  Like black and white.  Positive or negative.  There are two ways to view every situation life throws your way.</span></h1>
<p>People often ask me how I maintain such a positive attitude despite all I go through.  I tell them that first of all life is too short to spend being unhappy.  Besides&#8230; I have two choices.  I can be sick and miserable or I can be sick and happy.  The choice is mine.  And I chose to be sick and happy!</p>
<p><a href="http://novelpatient.com/wp-content/uploads/2010/05/Photo-on-2010-05-12-at-17.45.jpg" rel="shadowbox[post-814];player=img;"><img class="alignleft size-full wp-image-815" title="Double Vision" src="http://novelpatient.com/wp-content/uploads/2010/05/Photo-on-2010-05-12-at-17.45.jpg" alt="" width="200" height="150" align="left" /></a>It&#8217;s a sort of double vision as I see it.  There are two ways to look at every situation.  And right now I literally am experiencing double vision.  I am also having extreme difficulty lifting and moving my left leg.</p>
<p>Yesterday I saw a neurologist here in the hospital.  (Yes I am STILL in the hospital &#8211; 21st consecutive day and 27th total day.)  And he thinks that one of two things is going on.  Either I have an ongoing chronic probably Autoimmune neurological disease causing this and my other neurological problems.  If this is the case it might be something like <a class="zem_slink freebase/en/multiple_sclerosis" title="Multiple sclerosis" rel="wikipedia" href="http://en.wikipedia.org/wiki/Multiple_sclerosis">Multiple Sclerosis</a> or something similar.  Otherwise I might have had a one time incident a few years ago when I couldn&#8217;t move either of my legs for a month that left me with permanent damage.  Either way the infections I&#8217;ve been fighting has been exacerbating my symptoms.</p>
<p>While we are trying to figure things out my neurologist gave me an eye patch so that my double vision is reduced by looking out of only one eye.  Now I can see more clearly.  And what I see is this&#8230;</p>
<p>I could curl up into a ball and cry about having another serious health problem &#8211; a health problem that is effecting not only my vision but my mobility and my cognitive abilities.  Or I can realize that I already have had this problem either way.  Now I&#8217;ll finally hopefully have a name to put to it and a way to treat it and make it better and easier to live with!</p>
<p>Looking like a pirate with my eye patch (ARRRRRR), I no longer have double vision.  My vision is clear (despite the fact that it is still a bit blurry even with my glasses).  So I can clearly see that I have a choice in how I view my situation.  And I chose to deal with it with strong faith that things with be okay somehow as long as I choose happiness every time!</p>
<p style="text-align: center;"><a href="http://novelpatient.com/wp-content/uploads/2010/05/Photo-on-2010-05-12-at-17.49.jpg" rel="shadowbox[post-814];player=img;"><img class="aligncenter size-full wp-image-817" title="Choosing Happiness" src="http://novelpatient.com/wp-content/uploads/2010/05/Photo-on-2010-05-12-at-17.49.jpg" alt="" width="424" height="318" /></a></p>
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<p><strong>Recent Comments:</strong>
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<li><a href="http://novelpatient.com/2009/09/09/10-ways-to-stay-organized-with-a-chronic-illness/#comment-9859" rel="bookmark" title="March 14, 2012 at 6:33 pm"><span class="rc-commenter">Deborah Anderson</span> commented on <span class="rc-title">10 Ways To Stay Organized With A Chronic Illness</span></a> As a professional organizer, I can offer these tips in helping you be organized while managing pain.</li>
<li><a href="http://novelpatient.com/2009/11/15/visualizing-symptoms/#comment-9779" rel="bookmark" title="February 25, 2012 at 4:55 pm"><span class="rc-commenter">KatieM</span> commented on <span class="rc-title">Visualizing Symptoms</span></a> Hi Lauren, thanks for this. I am working on a similar project and would love to talk to you about st</li>
<li><a href="http://novelpatient.com/2011/06/12/scrapaganza/#comment-9307" rel="bookmark" title="November 28, 2011 at 11:23 am"><span class="rc-commenter">Meditours</span> commented on <span class="rc-title">Scrapaganza</span></a> Meditours is committed to providing medical treatments of the highest medical standards today by wor</li>
<li><a href="http://novelpatient.com/2010/04/07/fear/#comment-9294" rel="bookmark" title="November 23, 2011 at 9:00 pm"><span class="rc-commenter">68mu79d</span> commented on <span class="rc-title">Fear</span></a> </li>
<li><a href="http://novelpatient.com/2010/10/03/an-update-and-a-big-thanks/#comment-9212" rel="bookmark" title="October 25, 2011 at 7:35 am"><span class="rc-commenter">anna y</span> commented on <span class="rc-title">An Update and a Big THANKS!!!</span></a> you inspire me. i have no idea how i came across your blog&#8230; probably through some of my crazy goog</li>
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/04/29/patience-in-the-hospital/' rel='bookmark' title='Permanent Link: Patience in the Hospital'>Patience in the Hospital</a> <small>Though I am a Novel Patient, patience isn't my strong suit.  But patience is what...</small></li>
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		<title>Patience in the Hospital</title>
		<link>http://novelpatient.com/2010/04/29/patience-in-the-hospital/</link>
		<comments>http://novelpatient.com/2010/04/29/patience-in-the-hospital/#comments</comments>
		<pubDate>Thu, 29 Apr 2010 22:19:59 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<description><![CDATA[Though I am a Novel Patient, patience isn't my strong suit.  But patience is what is required of me right now. My kidney infection has triggered a flare of my Autoimmune Pancreatitis.  I've completely lost my appetite and am having severe upper Share Related posts:Reporting from the Hospital I hoped for the best, but prepared [...]


Related posts:<ol><li><a href='http://novelpatient.com/2010/04/13/reporting-from-the-hospital/' rel='bookmark' title='Permanent Link: Reporting from the Hospital'>Reporting from the Hospital</a> <small>I hoped for the best, but prepared for the worst, and unfortunately the worst won...</small></li>
<li><a href='http://novelpatient.com/2010/04/07/fear/' rel='bookmark' title='Permanent Link: Fear'>Fear</a> <small>Fear and OCD are a bad combination. It's bad enough to have a fearful thought...</small></li>
<li><a href='http://novelpatient.com/2010/03/27/better-enough/' rel='bookmark' title='Permanent Link: Better Enough?'>Better Enough?</a> <small>I'm well on my way on the road to recovery. I've been doing more and...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[Though I am a Novel Patient, patience isn't my strong suit.  But patience is what is required of me right now.

My kidney infection has triggered a flare of my Autoimmune Pancreatitis.  I've completely lost my appetite and am having severe upper 
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2010/04/13/reporting-from-the-hospital/' rel='bookmark' title='Permanent Link: Reporting from the Hospital'>Reporting from the Hospital</a> <small>I hoped for the best, but prepared for the worst, and unfortunately the worst won...</small></li>
<li><a href='http://novelpatient.com/2010/04/07/fear/' rel='bookmark' title='Permanent Link: Fear'>Fear</a> <small>Fear and OCD are a bad combination. It's bad enough to have a fearful thought...</small></li>
<li><a href='http://novelpatient.com/2010/03/27/better-enough/' rel='bookmark' title='Permanent Link: Better Enough?'>Better Enough?</a> <small>I'm well on my way on the road to recovery. I've been doing more and...</small></li>
</ol></p><hr />
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		<title>Sjogren&#8217;s Syndrome Awareness Month</title>
		<link>http://novelpatient.com/2010/04/26/sjogrens-syndrome-awareness-month-3/</link>
		<comments>http://novelpatient.com/2010/04/26/sjogrens-syndrome-awareness-month-3/#comments</comments>
		<pubDate>Tue, 27 Apr 2010 00:23:30 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<guid isPermaLink="false">http://novelpatient.com/?p=770</guid>
		<description><![CDATA[As the month draws to a close, I am reminded that April is Sjogren's Syndrome Awareness Month.  Sjogren's is my primary diagnosis, the overarching disease process that ties all (or most) or my symptoms together. But what is Sjogren's Syndrome?  Share Related posts:Sjogren&#8217;s Syndrome Awareness Month April is Sjogren's Syndrome Awareness Month, and since it [...]


Related posts:<ol><li><a href='http://novelpatient.com/2009/04/20/sjogrens-syndrome-awareness-month/' rel='bookmark' title='Permanent Link: Sjogren&#8217;s Syndrome Awareness Month'>Sjogren&#8217;s Syndrome Awareness Month</a> <small>April is Sjogren's Syndrome Awareness Month, and since it is currently my main diagnosis I...</small></li>
<li><a href='http://novelpatient.com/2010/03/18/my-illness-by-the-numbers/' rel='bookmark' title='Permanent Link: My Illness By The Numbers'>My Illness By The Numbers</a> <small>17 The number of diagnoses I've accumulated so far... Sjogren's Syndrome, Autoimmune Pancreatitis, Autoimmune Hepatitis,...</small></li>
<li><a href='http://novelpatient.com/2009/11/15/visualizing-symptoms/' rel='bookmark' title='Permanent Link: Visualizing Symptoms'>Visualizing Symptoms</a> <small>Appearances can be deceiving with a chronic illness.  Looking at a person you usually can't...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[As the month draws to a close, I am reminded that April is Sjogren's Syndrome Awareness Month.  Sjogren's is my primary diagnosis, the overarching disease process that ties all (or most) or my symptoms together.

But what is Sjogren's Syndrome?  
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<p>Related posts:<ol><li><a href='http://novelpatient.com/2009/04/20/sjogrens-syndrome-awareness-month/' rel='bookmark' title='Permanent Link: Sjogren&#8217;s Syndrome Awareness Month'>Sjogren&#8217;s Syndrome Awareness Month</a> <small>April is Sjogren's Syndrome Awareness Month, and since it is currently my main diagnosis I...</small></li>
<li><a href='http://novelpatient.com/2010/03/18/my-illness-by-the-numbers/' rel='bookmark' title='Permanent Link: My Illness By The Numbers'>My Illness By The Numbers</a> <small>17 The number of diagnoses I've accumulated so far... Sjogren's Syndrome, Autoimmune Pancreatitis, Autoimmune Hepatitis,...</small></li>
<li><a href='http://novelpatient.com/2009/11/15/visualizing-symptoms/' rel='bookmark' title='Permanent Link: Visualizing Symptoms'>Visualizing Symptoms</a> <small>Appearances can be deceiving with a chronic illness.  Looking at a person you usually can't...</small></li>
</ol></p>]]></content:encoded>
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		<title>Love Bug</title>
		<link>http://novelpatient.com/2010/04/16/love-bug/</link>
		<comments>http://novelpatient.com/2010/04/16/love-bug/#comments</comments>
		<pubDate>Sat, 17 Apr 2010 06:12:31 +0000</pubDate>
		<dc:creator>Novel Patient</dc:creator>
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		<description><![CDATA[Relationships are complicated enough, but adding chronic illnesses into the mix increases complications exponentially.  In fact, being bitten by the love bug leads to all sorts of symptoms, side effects, and potential complications.


Related posts:<ol><li><a href='http://novelpatient.com/2010/04/04/full-disclosure/' rel='bookmark' title='Permanent Link: Full Disclosure'>Full Disclosure</a> <small>Before I was in a wheelchair and now a walker, my illness was pretty invisible....</small></li>
<li><a href='http://novelpatient.com/2010/02/16/dependency/' rel='bookmark' title='Permanent Link: Dependency'>Dependency</a> <small>Having a chronic illness can rob you of your independence. Suddenly you find yourself dependent...</small></li>
<li><a href='http://novelpatient.com/2009/08/31/30-things-about-my-invisible-illness-you-may-not-know/' rel='bookmark' title='Permanent Link: 30 Things About My Invisible Illness You May Not Know'>30 Things About My Invisible Illness You May Not Know</a> <small>The illness I live with is:  Sjogren's Syndrome, but I also have Autoimmune Pancreatitis, Autoimmune...</small></li>
</ol>]]></description>
			<content:encoded><![CDATA[<p><a title="Broken Heart by Gabriela Camerotti, on Flickr" href="http://www.flickr.com/photos/face_it/900673849/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/900673849_7bb4d8b362.jpg" alt="Broken Heart" width="261" height="231" align="right" /></a>Relationships are complicated enough, but adding chronic illnesses into the mix increases complications exponentially.  In fact, being bitten by the love bug leads to all sorts of symptoms, side effects, and potential complications.</p>
<p>It&#8217;s been a long time since I&#8217;ve let myself like a guy.  So imagine my  surprise to find myself with a good old fashioned crush on someone.  But I have all the symptoms of a crush.  Fluttering in my chest.  Racing heart.  Warmth in my cheeks.  Funny feeling in the pit of my stomach when I think about if he might like me back.  But it&#8217;s also brought up a lot of confused feelings &#8211; some not so pleasant.</p>
<p>I feel so inadequate because of my illness.  Why would he want me when he could have countless girls who are whole and healthy?</p>
<p><a title="heart medication by pine apple lime, on Flickr" href="http://www.flickr.com/photos/pineapplelime/525442467/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/525442467_0fbb104501.jpg" alt="heart medication" width="256" height="383" align="left" /></a>Dating me would mean dealing with all my limitations that even I don&#8217;t want to deal with &#8211; side effects if you will.  It would begin with setting the date pending me feeling up to attending.  Not being able to keep plans because of my illness has caused problems even with my closest friends.  Breaking a date wouldn&#8217;t exactly be the way I&#8217;d want to start a new relationship, but the possibility is a reality that would come with dating me.  Then when he&#8217;d pick me up we&#8217;d have to lug my wheelchair or walker on the date.  The first thing I want to explain to him would hardly be how to assemble my wheelchair.  At dinner he&#8217;d get a full education on my eating difficulties as I filled the waiter in on my food allergies and took pills with dinner that would allow me to digest my food.  Sounds like a pretty mortifying first date in all honesty.</p>
<p>I worry that I wouldn&#8217;t be able to do his favorite activities with who ever I date.  I can&#8217;t even do my favorite activities anymore.  I can&#8217;t go hiking or horseback riding or play tennis.  What if physical activities are an important part if his life?  How would I ever share that with him?</p>
<p>And then there&#8217;s the issue of feeling inadequate due to my appearance.  I&#8217;ve put on 150 pounds from being on steroids (Prednisone) to control my autoimmune diseases.  Though I&#8217;ve now lost a small portion of it, I still feel so physically unattractive.  Not to mention the horrible acne and hair growing in strange places the same medication has also caused.  I so desperately want to be thin again and have clear skin again if only so I will be physically appealing to guys again.</p>
<p><a title="lⓄve by rOzα, on Flickr" href="http://www.flickr.com/photos/rose-/3284587256/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/3284587256_611e0b2391.jpg" alt="lⓄve" width="275" height="243" align="right" /></a>Then if things do work out after the initial shock of dating someone with chronic illnesses, there&#8217;s still all the complications that can arise down the road.  What if he gets tired of dealing with the day to day struggle of my illness?  If we someday get serious and get married, the reality is that having children and even sex itself can be difficult with a chronic and painful illness.  If we did have children, would I even have the energy to raise them?</p>
<p>I know.  I know.  Now I&#8217;m getting way ahead of myself.  But I don&#8217;t really know what else to say.  It feels like nothing I can say will explain how horribly inadequate my illness makes me feel.  I barely have the energy to be a good friend sometimes let alone a good girlfriend.</p>
<p>I hope that someday I find someone who can look past my illness and see me.  But until then I can&#8217;t help wishing that the love bug didn&#8217;t even bite me in the first place.<br />
<a title="love bug by Mandi White - www.photosbymandi.com, on Flickr" href="http://www.flickr.com/photos/mandilane/4407811779/"><img src="http://novelpatient.com/wp-content/uploads/2010/04/4407811779_802d20f911.jpg" alt="love bug" width="425" height="425" align="center" /></a></p>
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<li><a href="http://novelpatient.com/2009/09/09/10-ways-to-stay-organized-with-a-chronic-illness/#comment-9859" rel="bookmark" title="March 14, 2012 at 6:33 pm"><span class="rc-commenter">Deborah Anderson</span> commented on <span class="rc-title">10 Ways To Stay Organized With A Chronic Illness</span></a> As a professional organizer, I can offer these tips in helping you be organized while managing pain.</li>
<li><a href="http://novelpatient.com/2009/11/15/visualizing-symptoms/#comment-9779" rel="bookmark" title="February 25, 2012 at 4:55 pm"><span class="rc-commenter">KatieM</span> commented on <span class="rc-title">Visualizing Symptoms</span></a> Hi Lauren, thanks for this. I am working on a similar project and would love to talk to you about st</li>
<li><a href="http://novelpatient.com/2011/06/12/scrapaganza/#comment-9307" rel="bookmark" title="November 28, 2011 at 11:23 am"><span class="rc-commenter">Meditours</span> commented on <span class="rc-title">Scrapaganza</span></a> Meditours is committed to providing medical treatments of the highest medical standards today by wor</li>
<li><a href="http://novelpatient.com/2010/04/07/fear/#comment-9294" rel="bookmark" title="November 23, 2011 at 9:00 pm"><span class="rc-commenter">68mu79d</span> commented on <span class="rc-title">Fear</span></a> </li>
<li><a href="http://novelpatient.com/2010/10/03/an-update-and-a-big-thanks/#comment-9212" rel="bookmark" title="October 25, 2011 at 7:35 am"><span class="rc-commenter">anna y</span> commented on <span class="rc-title">An Update and a Big THANKS!!!</span></a> you inspire me. i have no idea how i came across your blog&#8230; probably through some of my crazy goog</li>
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