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Scrapaganza

Novel Patient — Mon, 13 Jun 2011 07:48:34 +0000

When I look back on the most rewarding experiences of my life, they are almost all to do with serving others. Right now I'm working on a community service project called Scrapaganza. Scrapaganza is a scrapbooking event at the Ronald McDonald Share

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© Novel Patient for Novel Patient, 2011. | Permalink | One comment | Add to del.icio.us
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The Grieving Process of Chronic Illness

Novel Patient — Tue, 18 Jan 2011 21:24:24 +0000

Sometimes I forget that learning to live with a chronic illness is an endless grieving process. I tend to get very caught up in maintaining a positive attitude, and fail to let myself feel the negative feelings that naturally come with all the chan Share

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Recovery Blues

Novel Patient — Sat, 04 Dec 2010 04:26:47 +0000

The recovery process after a long hospitalization can be long, boring, and frankly difficult on so many levels. Yes, I said after a long hospitalization. I'm pleased to share I'll have been home three weeks on Monday! And while being home is an Share

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Trapped on a Pedestal

Novel Patient — Thu, 11 Nov 2010 23:35:59 +0000

This isn't one of those happy inspiring posts I often do. Why? Well, right now I'm not feeling happy or inspiring. I'm feeling depressed and frustrated with the world. Today marks the 8th week of my stay in the hospital. From here on out I' Share

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Creatively Courageously Embracing Health

Novel Patient — Mon, 18 Oct 2010 22:59:46 +0000

This is not an easy thing for me to confess, so please be kind. I realized that I am afraid of getting better. Not because I am afraid of being well; I want nothing more than to be well. I am afraid of getting better because I am afraid that I Share

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Myasthenia Gravis: A New Diagnosis Knocks Me From My Path

Novel Patient — Sun, 10 Oct 2010 05:44:20 +0000

When you are living with multiple chronic illnesses things can quickly spiral out of control. Cruising along getting through the day to day and then suddenly you are veering off the road and into the dark unknown. What started as a tiny pimple t Share

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An Update and a Big THANKS!!!

Novel Patient — Mon, 04 Oct 2010 04:49:11 +0000

Even as I listen to the alarms of my own monitors, angry that things still aren't quite as they should be, today I just feel so grateful to be alive. Life is so precious and short and wonderful. I feel so lucky to be breathing on my own again. It Share

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Current Hosptialization Update

Novel Patient — Thu, 23 Sep 2010 18:45:30 +0000

I have multiple autoimmune diseases that have made me really sick over the years. But got a bad skin infection (cellulitis) last week and ended up in the hospital last Friday mostly because I have so many complications including being on a lot o Share

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Too Young: Invisible Illness and Pain

Novel Patient — Mon, 13 Sep 2010 18:47:12 +0000

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Scrapbooking My Illness Journey

Novel Patient — Sun, 22 Aug 2010 22:53:00 +0000

You have to take the good with the bad. I subscribe to this philosophy not just when it comes to my life but also when it comes to my favorite hobby – scrapbooking.

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I started scrapbooking almost two years ago now. My mom had made me a beautiful scrapbook for my Bat Mitzvah when I was 13. She promised my younger sister Danielle the same thing. But life got in the way and my sister’s Bat Mitzvah scrapbook turned into a middle school graduation scrapbook then a high school graduation scrapbook and finally a college graduation scrapbook.

As Danielle’s college graduation approached my mom still hadn’t started the scrapbook. But I figured maybe I could help. After all, I was home all day with nothing to do. It might even be fun, I figured. I had no idea I would end up loving it so much, that I would find a hidden talent, and a passion… well more like an obsession.

When all was said and done, my sister’s college graduation scrapbook became a three volume set encompassing her entire life up until that point. It was time to move on to other things, so I started in on my own life.

While going through my own pictures from the last several years, there were many pertaining to my illness. Hospital stays, doctors appointments, and so on. There was even a birthday I spent in the hospital.

At first I was hesitant to include these not so happy memories in my scrapbook. But I realized that these were experiences that I also wanted to remember. These bad times in my life are part of what makes me who I am. So I put them in.

The actual time I spend scrapbooking is therapeutic. It exercises my creative muscles and helps me relax for a few hours while I design and arrange, cut and glue, label and decorate.

It’s actually rather therapeutic to scrapbook memories of my illness. Once it is scrapbooked, it feel more concretely in the past. And it can help me look to the future. For instance, I did a page of my me taking my first few steps when I first started walking again. Now I am able to walk around a store! I can look back and remember it and see how far I’ve come!

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© Novel Patient for Novel Patient, 2010. | Permalink | 4 comments | Add to del.icio.us
Post tags: actual time, Appointment, appointments, art, arts and crafts, bat mitzvah, College, college graduation, crafts, creative muscles, Danielle, doctor, Doctors, ER, experience, experiences, future, glue, happy memories, help, high school graduation, hospital, How-To Sites, illness, Infusion, journey, last several years, Lauren, life, life got in the way, mom, novel, obsession, passion, patient, philosophy, picture, rituxan, rituxan infusion, scrapbook, scrapbook memories, scrapbook page, scrapbooker, scrapbooking, sister, walk, WALKING